Department of Global Health and Social Medicine, Harvard Medical School, United States.
Soc Sci Med. 2012 Sep;75(5):836-44. doi: 10.1016/j.socscimed.2012.03.045. Epub 2012 May 2.
In this article, I use ethnographic data on end-of-life care in Northern Thailand to address the relationship between ethics and place. My analysis is based on fieldwork conducted in 2007-2008, consisting of twenty in-depth oral life-histories of dying patients; ninety-five interviews with patients, family members and caretakers; fifty-four interviews with providers, administrators, civil society leaders and other key informants; as well as participant-observation of care of patients at the deathbed. In Northern Thailand, many feel that it is ethical to withdraw life support in the home, but unethical to withdraw it in the hospital. This is because the place of death is partly responsible for the quality of rebirth. Hospitals, on one hand, are powerful for saving lives; but as places to die, they are amoral, dangerous, devoid of ceremonial history and haunted by spirits. Homes, on the other hand, are optimal for dying because they are imbued with moral power from a history of beneficial ceremony and family living. Hospitalized patients at the edge of death are often rushed home by ambulance to withdraw life support in the more ethical place. I argue that the two places can be considered different ethical locations, because each is inhabited by a unique ethical framework governing withdrawal of life support. This concept has implications for the contemporary globalization of bioethics and for understanding practices that arise around ethically charged decisions.
在本文中,我使用了泰国北部临终关怀的民族志数据来探讨伦理与地点之间的关系。我的分析基于 2007 年至 2008 年的实地调查,包括 20 位临终患者的深入口述生命史;95 次对患者、家属和护理人员的访谈;54 次对提供者、管理人员、公民社会领袖和其他关键信息提供者的访谈;以及对临终关怀的参与观察。在泰国北部,许多人认为在家中停止生命支持是合乎道德的,但在医院中这样做是不道德的。这是因为死亡地点部分决定了重生的质量。一方面,医院有强大的救命能力;但作为死亡的地方,它们是无道德的、危险的,缺乏仪式历史,并且被幽灵所困扰。另一方面,家庭是最适合死亡的地方,因为它们具有有益仪式和家庭生活的历史所赋予的道德力量。处于死亡边缘的住院患者经常被救护车匆忙送回家中,以在更符合道德的地方停止生命支持。我认为这两个地方可以被视为不同的伦理场所,因为每个场所都存在着独特的伦理框架,支配着生命支持的撤出。这一概念对当代生物伦理学的全球化以及理解围绕伦理决策产生的实践具有影响。