Department of Pediatrics, The Johns Hopkins Medical Institutions, Baltimore, MD 21287, USA.
Epilepsy Behav. 2012 Aug;24(4):445-8. doi: 10.1016/j.yebeh.2012.05.003. Epub 2012 Jun 5.
It has been previously reported that child neurologists often view the ketogenic diet (KD) as a treatment of last resort. An anonymous survey was provided to parents of 107 consecutive children starting the KD at our institution. The average time from epilepsy to KD onset was 2.8years, but the average wait time for KD onset was only 1.7months after referral. The most common reason for starting the KD was seizure reduction, followed by less intense seizures, medication reduction, and cognitive improvement. The majority (72%) obtained information about the KD from their neurologist; however, more than half also had viewed related websites. The mean neurologist supportiveness score was 7.9/10; 53% reporting their neurologist as maximally supportive (score of 10). A score of 10 was more likely seen in those who also scored their pediatrician with 10 (69% vs. 15%, p<0.001) and who were self-referred from our institution (56% vs. 27%, p=0.001).
先前有报道称，儿童神经科医生通常将生酮饮食（KD）视为最后的治疗手段。我们向在我院开始接受 KD 的 107 名连续儿童的家长提供了一份匿名调查。从癫痫发作到 KD 开始的平均时间为 2.8 年，但在转介后开始 KD 的平均等待时间仅为 1.7 个月。开始 KD 的最常见原因是减少癫痫发作，其次是癫痫发作强度降低、减少药物治疗和认知改善。大多数（72%）从他们的神经科医生那里获得了关于 KD 的信息；然而，超过一半的人还浏览了相关网站。平均神经科医生支持度评分为 7.9/10；53%的人报告他们的神经科医生非常支持（评分为 10）。在那些将儿科医生评分也为 10（69%比 15%，p<0.001）和从我们机构自行转介的人（56%比 27%，p=0.001）中，更有可能看到评分 10。
