炎症性肠病中内化污名和抗污名的初步评估。
A preliminary evaluation of internalized stigma and stigma resistance in inflammatory bowel disease.
机构信息
Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.
出版信息
J Health Psychol. 2013 Apr;18(4):451-60. doi: 10.1177/1359105312446768. Epub 2012 Jun 11.
Abstract
Illness stigmatization among inflammatory bowel diseases (IBDs) is poorly understood. We aim to characterize internalized stigma and stigma resistance in IBD patients, and evaluate their relationships to outcomes. A total of 191 IBD patients reported internalized stigma, resistance, demographic and clinical information, and several outcomes: health-related quality of life (HRQOL), psychological distress, self-esteem, and self-efficacy. Overall 36% experienced internalized stigma and 88% moderate to high stigma resistance behaviors. Internalized stigma strongly related to poorer outcomes while resistance demonstrated a weaker, opposite effect. Internalized stigma and stigma resistance are important considerations for IBD outcomes. Interventions to reduce internalized stigma and leverage resistance are warranted.
摘要
炎症性肠病（IBD）患者的疾病污名化现象尚未得到充分认识。本研究旨在描述 IBD 患者的内化污名和抗污名行为，并评估它们与结局的关系。共 191 例 IBD 患者报告了内化污名、抗污名、人口统计学和临床信息以及多个结局，包括健康相关生活质量（HRQOL）、心理困扰、自尊和自我效能。总体而言，36%的患者经历了内化污名，88%的患者表现出中重度抗污名行为。内化污名与较差的结局密切相关，而抗污名行为则表现出较弱的相反效应。内化污名和抗污名行为是 IBD 结局的重要考虑因素。减少内化污名和利用抗污名行为的干预措施是必要的。
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