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本文引用的文献

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Inflamm Bowel Dis. 2012 Nov;18(11):2086-91. doi: 10.1002/ibd.22888. Epub 2012 Jan 31.
2
Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review.基于系统评价，炎症性肠病的发病率和患病率随时间逐渐增加。
Gastroenterology. 2012 Jan;142(1):46-54.e42; quiz e30. doi: 10.1053/j.gastro.2011.10.001. Epub 2011 Oct 14.
3
Prevalence of Internalized Stigma among Persons with Severe Mental Illness.重度精神疾病患者内化耻辱感的患病率
Stigma Res Action. 2011 Jan 1;1(1):3-10. doi: 10.5463/sra.v1i1.9.
4
The tasks of self-managing hepatitis C: the significance of disclosure.自我管理丙型肝炎的任务：披露的意义。
Psychol Health. 2012;27(4):460-74. doi: 10.1080/08870446.2011.592982. Epub 2011 Jul 7.
5
Exploring the relationship between body mass index and health-related quality of life: a pilot study of the impact of weight self-stigma and experiential avoidance.探讨体重指数与健康相关生活质量之间的关系：体重自我污名和体验回避影响的初步研究。
J Health Psychol. 2011 Jul;16(5):722-7. doi: 10.1177/1359105310388321. Epub 2011 Mar 25.
6
Stigma and social participation in Southern India: differences and commonalities among persons affected by leprosy and persons living with HIV/AIDS.印度南部的污名与社会参与：麻风病患者和艾滋病毒/艾滋病患者之间的差异和共同点。
Psychol Health Med. 2011 Dec;16(6):695-707. doi: 10.1080/13548506.2011.555945. Epub 2011 May 24.
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The prevalence and predictors of stigma amongst people living with HIV/AIDS in the Western Province.西部省份艾滋病毒/艾滋病感染者中耻辱感的患病率及预测因素。
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Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis.精神疾病患者内化污名的相关性及其后果：系统评价和荟萃分析。
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炎症性肠病中内化污名和抗污名的初步评估。

A preliminary evaluation of internalized stigma and stigma resistance in inflammatory bowel disease.

机构信息

Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.

出版信息

J Health Psychol. 2013 Apr;18(4):451-60. doi: 10.1177/1359105312446768. Epub 2012 Jun 11.

DOI:10.1177/1359105312446768
PMID:22689587
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8451966/
Abstract

Illness stigmatization among inflammatory bowel diseases (IBDs) is poorly understood. We aim to characterize internalized stigma and stigma resistance in IBD patients, and evaluate their relationships to outcomes. A total of 191 IBD patients reported internalized stigma, resistance, demographic and clinical information, and several outcomes: health-related quality of life (HRQOL), psychological distress, self-esteem, and self-efficacy. Overall 36% experienced internalized stigma and 88% moderate to high stigma resistance behaviors. Internalized stigma strongly related to poorer outcomes while resistance demonstrated a weaker, opposite effect. Internalized stigma and stigma resistance are important considerations for IBD outcomes. Interventions to reduce internalized stigma and leverage resistance are warranted.

摘要

炎症性肠病（IBD）患者的疾病污名化现象尚未得到充分认识。本研究旨在描述 IBD 患者的内化污名和抗污名行为，并评估它们与结局的关系。共 191 例 IBD 患者报告了内化污名、抗污名、人口统计学和临床信息以及多个结局，包括健康相关生活质量（HRQOL）、心理困扰、自尊和自我效能。总体而言，36%的患者经历了内化污名，88%的患者表现出中重度抗污名行为。内化污名与较差的结局密切相关，而抗污名行为则表现出较弱的相反效应。内化污名和抗污名行为是 IBD 结局的重要考虑因素。减少内化污名和利用抗污名行为的干预措施是必要的。