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本文引用的文献

1
Enacting genetic responsibility: experiences of mothers who carry the fragile X gene.实施遗传责任:携带脆性 X 基因的母亲的经历。
Sociol Health Illn. 2011 Mar;33(3):420-33. doi: 10.1111/j.1467-9566.2010.01289.x. Epub 2010 Nov 5.
2
Narrating disability, narrating religious practice: reconciliation and fragile X syndrome.讲述残疾,讲述宗教实践:和解与脆性 X 综合征。
Intellect Dev Disabil. 2010 Apr;48(2):99-111. doi: 10.1352/1934-9556-48.2.99.
3
Maternal responsivity predicts language development in young children with fragile X syndrome.母亲反应能力可预测脆性 X 综合征幼儿的语言发展。
Am J Intellect Dev Disabil. 2010 Jan;115(1):54-75. doi: 10.1352/1944-7558-115.1.54.
4
A solution to limitations of cognitive testing in children with intellectual disabilities: the case of fragile X syndrome.解决智力障碍儿童认知测试局限性的方法:脆性 X 综合征案例。
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Intraclass correlations: uses in assessing rater reliability.组内相关系数:在评估评分者可靠性中的应用。
Psychol Bull. 1979 Mar;86(2):420-8. doi: 10.1037//0033-2909.86.2.420.
6
Perceived quality of life in mothers of children with fragile X syndrome.脆性X综合征患儿母亲的生活质量感知
Am J Ment Retard. 2008 May;113(3):159-77. doi: 10.1352/0895-8017(2008)113[159:PQOLIM]2.0.CO;2.
7
Child temperaments, differential parenting, and the sibling relationships of children with autism spectrum disorder.儿童气质、差异化养育与自闭症谱系障碍儿童的同胞关系
J Autism Dev Disord. 2008 Oct;38(9):1740-50. doi: 10.1007/s10803-008-0560-z. Epub 2008 Mar 28.
8
The role of maternal responsivity in the development of children with intellectual disabilities.母亲反应性在智力残疾儿童发展中的作用。
Ment Retard Dev Disabil Res Rev. 2007;13(4):330-8. doi: 10.1002/mrdd.20177.
9
Language development and fragile X syndrome: profiles, syndrome-specificity, and within-syndrome differences.语言发展与脆性X综合征:概况、综合征特异性及综合征内差异
Ment Retard Dev Disabil Res Rev. 2007;13(1):36-46. doi: 10.1002/mrdd.20142.
10
Communication in young children with fragile X syndrome: a qualitative study of mothers' perspectives.脆性X综合征幼儿的沟通能力:关于母亲观点的定性研究
Am J Speech Lang Pathol. 2006 Nov;15(4):353-64. doi: 10.1044/1058-0360(2006/033).

养育有和没有脆性 X 综合征的幼儿。

Parenting young children with and without Fragile X syndrome.

机构信息

University of Kansas, Lawrence, Cognitive Psychology, Lawrence, KS 66045, USA.

出版信息

Am J Intellect Dev Disabil. 2012 May;117(3):194-206. doi: 10.1352/1944-7558-117.3.194.

DOI:10.1352/1944-7558-117.3.194
PMID:22716262
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3583206/
Abstract

The purpose of this study was to examine maternal parenting styles across age-matched siblings using a within-family design, in which one child has Fragile X syndrome. Thirteen families participated; children were aged 16 to 71 months. Mothers completed several videotaped activities with each child separately as well as an interview. Mothers used a consistent, responsive style with both children, using the same degree of positive affect and warmth. Differences included using more behavior management strategies with the child with Fragile X and a conversational style of interaction with the sibling. Differences in approaches suggest the mothers adapted to the developmental differences between the children. The interview data supported these findings; mothers were aware of the changes made to accommodate the developmental differences.

摘要

本研究旨在采用家庭内设计,通过比较年龄匹配的兄弟姐妹来考察母亲的育儿风格,其中一个孩子患有脆性 X 综合征。共有 13 个家庭参与;儿童年龄为 16 至 71 个月。母亲分别与每个孩子一起完成了几个录像活动以及一次访谈。母亲对两个孩子都使用一致、响应的风格,表现出相同程度的积极情感和温暖。不同之处在于,与脆性 X 综合征患儿更多地使用行为管理策略,与兄弟姐妹则采用对话式的互动方式。这些方法上的差异表明,母亲适应了孩子之间的发展差异。访谈数据支持了这些发现;母亲意识到为适应发展差异而做出的改变。