Department of Psychology, Catholic University of Milan, and Niguarda Ca' Granda Hospital, Milan, Italy.
Int J Psychol. 2013;48(3):194-205. doi: 10.1080/00207594.2012.691977. Epub 2012 Jun 25.
Amyotrophic lateral sclerosis is a fatal neurodegenerative disease with a progressive and rapid course that, so far, cannot be stopped or reversed. The psychological impact of the disease is huge, on both patients and caregivers. This review summarizes studies that have investigated quality of life, depression, anxiety, pain, spiritual and existential issues, hope, and hopelessness in the ALS field, with attention to both patients and their caregivers. Psychological support and the possible role of psychologists in the ALS field are also discussed.
肌萎缩侧索硬化症是一种致命的神经退行性疾病，具有进行性和快速发展的特点，迄今为止无法阻止或逆转。该疾病对患者和护理人员的心理影响巨大。本综述总结了研究肌萎缩侧索硬化症领域中生活质量、抑郁、焦虑、疼痛、精神和存在问题、希望和无望感的研究，同时关注患者及其护理人员。还讨论了心理支持以及心理学家在肌萎缩侧索硬化症领域中的可能作用。
