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“在我看来,这只是暂时的”:一项关于癌症对男性的影响及其应对策略的定性研究。

"In My Mind, It Was Just Temporary": A Qualitative Study of the Impacts of Cancer on Men and Their Strategies to Cope.

机构信息

Université du Québec à Montréal, Montréal, Quebec, Canada.

Centre de recherche du Centre hospitalier de l'Université de Montréal, Montréal, Quebec, Canada.

出版信息

Am J Mens Health. 2024 Jan-Feb;18(1):15579883231215153. doi: 10.1177/15579883231215153.

DOI:10.1177/15579883231215153
PMID:38179864
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10771074/
Abstract

Individuals who are diagnosed and treated for cancer use a variety of strategies to manage its impacts. However, there is currently a lack of research on men's experience with managing cancer impacts, which is necessary to better support them throughout the cancer care continuum. This study explored the experience of men diagnosed with cancer, focusing on the impacts of the illness and its treatment and men's strategies to cope. A qualitative descriptive design was used. Thirty-one men ( = 52.7 [26-82] years) diagnosed with various cancer types were recruited to take part in individual telephone interviews ( = 14) or online focus groups ( = 17) addressing the impacts of cancer and strategies they used to cope with these impacts. Directed content analysis was performed, using Fitch's (2008) supportive care framework to guide the analysis. Cancer impacts and strategies used to cope were classified into six categories: physical, psychological, interpersonal, informational, practical, and spiritual. Results indicate that the cancer experience is diverse and multifaceted rather than homogeneous. Medical and supportive care services could be more effectively personalized to meet the diversity of men's needs by adopting a comprehensive and holistic approach to supportive care. Working in partnership with patients, it appears promising to recognize and identify men's needs and match them to appropriate resources to provide truly supportive care.

摘要

个体被诊断和治疗癌症时会采用多种策略来应对其影响。然而,目前缺乏男性应对癌症影响的经验研究,这对于在癌症治疗全程更好地支持他们是必要的。本研究探讨了男性癌症患者的经历,重点关注疾病及其治疗的影响以及男性应对这些影响的策略。采用定性描述性设计。招募了 31 名男性(年龄范围为 26-82 岁,平均年龄为 52.7 岁),他们被诊断出患有各种癌症类型,参与了个人电话访谈(n=14)或在线焦点小组(n=17),讨论癌症的影响以及他们用来应对这些影响的策略。采用 Fitch(2008)的支持性护理框架来指导分析,对内容进行定向分析。癌症的影响和应对策略被分为六个类别:身体、心理、人际、信息、实际和精神。结果表明,癌症的经历是多样化和多方面的,而不是单一的。通过采用全面和整体的支持性护理方法,医疗和支持性护理服务可以更加有效地个性化,以满足男性多样化的需求。与患者合作,似乎有望通过识别和确定男性的需求并将其与适当的资源相匹配,来提供真正的支持性护理。

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本文引用的文献

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J Cancer Surviv. 2025 Feb;19(1):306-318. doi: 10.1007/s11764-023-01467-1. Epub 2023 Oct 18.
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Adopting a learning pathway approach to patient partnership in telehealth: A proof of concept.在远程医疗中采用学习路径方法促进患者参与:概念验证。
PEC Innov. 2023 Oct 1;3:100223. doi: 10.1016/j.pecinn.2023.100223. eCollection 2023 Dec 15.
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The impact of testicular cancer and its treatment on masculinity: A systematic review.睾丸癌及其治疗对男性气质的影响:系统评价。
Psychooncology. 2022 Sep;31(9):1459-1473. doi: 10.1002/pon.5994. Epub 2022 Jul 21.
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Supportive care needs of men with prostate cancer: A systematic review update.前列腺癌男性患者的支持性照护需求:系统评价更新。
Eur J Cancer Care (Engl). 2022 Mar;31(2):e13541. doi: 10.1111/ecc.13541. Epub 2022 Jan 17.
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