The University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia.
Curr Opin Support Palliat Care. 2012 Sep;6(3):379-85. doi: 10.1097/SPC.0b013e328356ab0c.
The support of family caregivers in palliative care is critical and well recognized; yet the fact that caregivers still face significant unmet needs highlights a considerable gap in addressing this issue. Current themes on the caregiving experience in palliative care are presented.
The recent literature suggests a shift towards a broader understanding of the caregiving experience in palliative care in terms of better integration of caregivers of patients with noncancer illnesses into palliative care, improved continuity of care among different settings and better integration of guidelines and evidence into practice. Several risk groups and factors of caregiving in palliative care have been identified. The literature review emphasizes a public health approach as an important step in addressing the caregivers' burden. While 'the right way' of supporting caregivers is still to be established, consideration of caregivers' roles as co-providers and co-recipients of care offers numerous implications for research and clinical practice.
This review demonstrates the need for the development of specific strategies aimed at supporting informal caregivers in caring for their loved ones in different settings and periods of advanced life-threatening illnesses. Open issues in searching for 'the right way' to care for caregivers in palliative care are presented.
在姑息治疗中，对家庭照顾者的支持至关重要，这一点已得到广泛认可；然而，照顾者仍面临着大量未得到满足的需求，这突显了在解决这一问题方面存在着相当大的差距。本文介绍了姑息治疗中照顾者体验的最新主题。
最近的文献表明，姑息治疗中对照顾者体验的理解有了转变，即更好地将非癌症患者的照顾者纳入姑息治疗，改善不同环境之间的护理连续性，并将指南和证据更好地纳入实践。姑息治疗中已经确定了几个有风险的照顾者群体和因素。文献综述强调了采用公共卫生方法是解决照顾者负担的重要步骤。虽然支持照顾者的“正确方法”仍有待确定，但考虑到照顾者作为共同提供者和共同接受者的角色，为研究和临床实践提供了许多启示。
本综述表明，需要制定特定的策略，旨在在不同的环境和晚期危及生命的疾病阶段为照顾者提供支持，以照顾他们所爱的人。姑息治疗中寻找“正确方法”来照顾照顾者的一些悬而未决的问题也被提出来了。
