Brazil Kevin, Bainbridge Daryl, Rodriguez Christine
St. Joseph's Health System Research Network, Hamilton, Ontario, Canada.
Am J Hosp Palliat Care. 2010 Mar;27(2):111-6. doi: 10.1177/1049909109350176. Epub 2009 Dec 14.
The primary objective of this study was to examine how the comprehensive nature of the Stress Process Model could elucidate on the stressors associated with caring for a palliative cancer patient.
A qualitative research strategy involving home-based face-to-face interviews with 12 bereaved family caregivers was used to examine the caregiving experience.
The primary stressors associated with caring for the palliative cancer care patients stemmed from care recipient symptoms and personal care needs. The absence of adequate support from the formal health care delivery system was a consistent message from all participants. There was evidence of financial stress primarily associated with the purchase of private home care to supplement formal care. In contrast, the resources that family caregivers relied on to moderate the stressful effects of caregiving included extended family, friends, and neighbors. While the stress of direct caregiving was high, the study revealed that formal care was also a significant source of stress for family caregivers.
It was concluded that an appropriately financed, integrated system of care that followed a person-centered philosophy of care would best meet the needs of the patient and his or her family.
本研究的主要目的是探讨压力过程模型的综合性如何阐释与照顾姑息治疗癌症患者相关的压力源。
采用定性研究策略，对12名丧亲的家庭照顾者进行居家面对面访谈，以考察照顾经历。
与照顾姑息治疗癌症患者相关的主要压力源源于受照顾者的症状和个人护理需求。所有参与者一致表示，正规医疗保健服务系统缺乏足够的支持。有证据表明，经济压力主要与购买私人家庭护理以补充正规护理有关。相比之下，家庭照顾者用来缓解照顾压力影响的资源包括大家庭成员、朋友和邻居。虽然直接照顾的压力很大，但研究表明，正规护理对家庭照顾者来说也是一个重要的压力源。
得出的结论是，一个资金充足、以患者为中心的综合护理系统最能满足患者及其家人的需求。
