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从患者角度看,通过电子健康改善生活质量。

Improving quality of life through eHealth - the patient perspective.

作者信息

Koch Sabine

机构信息

Department of Learning, Informatics and Ethics, Karolinska Instituet, Stockholm, Sweden.

出版信息

Stud Health Technol Inform. 2012;180:25-9.

Abstract

Patients have moved away from being passive recipients of care. They require access to their own health data, shared decision making and control over their care pathways. eHealth offers the tools to meet these requirements and to support both patients and care providers. However, opinions diverge in how far a patient-provider partnership should be supported or full consumer autonomy be provided and there is still not enough evidence on how to design and implement effective eHealth solutions that create patient benefits. In this keynote paper different perspectives on the patient empowerment process, outcome measurement and eHealth development will be discussed as well as ongoing developments in the field of e-citizen services be presented.

摘要

患者已不再是被动的医疗服务接受者。他们需要获取自己的健康数据,参与共同决策并掌控自己的医疗路径。电子健康提供了满足这些需求并支持患者和医疗服务提供者的工具。然而,对于应在多大程度上支持患者与提供者的伙伴关系或给予患者完全的自主权,各方观点存在分歧,而且关于如何设计和实施能为患者带来益处的有效电子健康解决方案,目前仍缺乏足够的证据。在这篇主题论文中,将讨论关于患者赋权过程、结果测量和电子健康发展的不同观点,并介绍电子公民服务领域的当前发展情况。

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