El Morr Christo
American University of Kuwait, Kuwait.
Stud Health Technol Inform. 2012;180:798-802.
Holistic disability rights monitoring is essential in order to translate rights on paper into rights in reality for people with disabilities. At the same time, evidence-based knowledge produced through holistic monitoring has to be made accessible to a broad range of groups - researchers, representatives of disability community, people with disabilities, the media, policy makers, general public - and also has to contribute to building capacity within disability community around human rights issues. This article focuses on the design process of a complex Virtual Knowledge Network (VKN) as an operational tool to support mobilization and dissemination of evidence-based knowledge produced by the Disability Rights Promotion International Canada (DRPI-Canada) project. This tool is embedded in the more general framework of the project grounded in a human rights approach to disability and that acknowledges the importance of creating knowledgeable communities in order to make the disability rights monitoring efforts sustainable, advancing thus the decision making process in Canada in order to enhance the quality of life of people with disabilities.
全面的残疾权利监测至关重要,以便将纸上的权利转化为残疾人在现实中的权利。与此同时,通过全面监测产生的基于证据的知识必须让广泛的群体能够获取——研究人员、残疾群体代表、残疾人、媒体、政策制定者、普通公众——并且还必须有助于围绕人权问题在残疾群体内部建设能力。本文重点关注一个复杂的虚拟知识网络(VKN)的设计过程,该网络作为一种操作工具,以支持由加拿大促进残疾权利国际组织(DRPI - 加拿大)项目产生的基于证据的知识的动员和传播。这个工具嵌入在该项目更广泛的框架中,该框架基于对残疾问题的人权方法,并承认创建知识型社区对于使残疾权利监测工作可持续的重要性,从而推动加拿大的决策过程,以提高残疾人的生活质量。