Sunnybrook Health Sciences Centre, Toronto, Canada.
Nutr Clin Pract. 2012 Oct;27(5):661-8. doi: 10.1177/0884533612457181. Epub 2012 Aug 15.
Many patients with advanced head and neck cancer become unable to obtain sufficient nutrition and hydration orally, leading to considerable weight loss and compromised clinical outcomes. The percutaneous endoscopic gastrostomy (PEG) tube is ideal for this population who require longer term nutrition support due to the effects of cancer treatment. Although clinical experts at the Odette Cancer Centre (OCC) report positive patient feedback with PEG tubes, there is debate in the literature regarding the associated quality of life (QoL). The study objective was to learn about the experience of patients living with a PEG tube.
A neutral questionnaire with closed- and open-ended questions was developed, tested, and used to collect data. Quantitative data were analyzed using descriptive statistics to determine whether the patients' experiences were positive/neutral or negative. Qualitative data were assessed for common themes, and frequency was counted.
Of the 51 participants, 84% felt the PEG tube had a positive/neutral effect on their QoL. Ninety percent felt that the PEG tube was "very much" or "quite a bit" worthwhile. In addition, 96% would recommend it to another patient. The 11 questions reflecting domains of QoL affected by living with a PEG tube were answered positively or neutrally at least 71% of the time.
Results indicate that the patient experience with the PEG tube is generally positive or neutral, thus demonstrating a different outcome than recent literature. This study will help improve understanding regarding the experience of living with a PEG tube from the patient perspective.
许多晚期头颈部癌症患者无法通过口腔获得足够的营养和水分，导致体重明显下降，临床预后恶化。经皮内镜下胃造口术（PEG）管适用于因癌症治疗而需要长期营养支持的患者。尽管奥黛特癌症中心（OCC）的临床专家报告称 PEG 管的患者反馈良好，但文献中仍存在关于其生活质量（QoL）的争议。本研究旨在了解带 PEG 管患者的体验。
开发了一份带有封闭式和开放式问题的中性问卷，并对其进行了测试和使用以收集数据。使用描述性统计方法分析定量数据，以确定患者的体验是积极/中性还是消极。对定性数据进行主题评估，并计算频率。
在 51 名参与者中，84%的人认为 PEG 管对他们的 QoL 有积极/中性影响。90%的人认为 PEG 管“非常”或“相当有价值”。此外，96%的人会向其他患者推荐它。反映带 PEG 管生活影响的 QoL 领域的 11 个问题，至少有 71%的回答是积极或中性的。
结果表明，患者对 PEG 管的体验总体上是积极或中性的，这与最近的文献结果不同。本研究将有助于从患者角度更好地了解带 PEG 管生活的体验。
