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关于母体苯丙酮尿症患者知识测试的开发。

The development of a patient knowledge test on maternal phenylketonuria.

作者信息

Shiloh S, St James P, Waisbren S

出版信息

Patient Educ Couns. 1990 Oct;16(2):139-46. doi: 10.1016/0738-3991(90)90088-3.

DOI:10.1016/0738-3991(90)90088-3
PMID:2290768
Abstract

A short multiple-choice knowledge test on maternal phenylketonuria was developed and validated. It was administered to 49 young female patients participating in a longitudinal study. The test was analyzed for its psychometric qualities and was found to be reliable: Cronbach alpha 0.62. Its validity was indicated by a moderate correlation with IQ scores (r = 0.40) and by its significantly differentiating between subjects who participated in patient education group meetings and those who did not. Items varied in difficulty, indicating which areas of knowledge need special educational efforts. The test was recommended for use to assess patients' knowledge, to identify misconceptions that appear to be remedied by patient education, to stimulate group discussions and to help evaluate educational programs.

摘要

开发并验证了一项关于母体苯丙酮尿症的简短多项选择题知识测试。该测试应用于49名参与纵向研究的年轻女性患者。对该测试的心理测量学特性进行了分析,发现其具有可靠性:克朗巴哈系数α为0.62。其有效性表现为与智商得分具有中等相关性(r = 0.40),并且能够显著区分参加患者教育小组会议的受试者和未参加的受试者。各项目难度不同,这表明哪些知识领域需要特别的教育努力。该测试被推荐用于评估患者的知识水平、识别似乎可通过患者教育纠正的误解、激发小组讨论以及帮助评估教育项目。

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引用本文的文献

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Nutr Metab (Lond). 2017 Aug 17;14:57. doi: 10.1186/s12986-017-0207-1. eCollection 2017.
2
The Resource Mothers Study of Maternal Phenylketonuria: preliminary findings.母体苯丙酮尿症资源母亲研究:初步结果。
J Inherit Metab Dis. 2004;27(2):145-55. doi: 10.1023/B:BOLI.0000028785.20901.d9.
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Social factors and the meaning of food in adherence to medical diets: results of a maternal phenylketonuria summer camp.
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J Inherit Metab Dis. 1997 Mar;20(1):21-7. doi: 10.1023/A:1005349204797.
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Psychosocial factors in maternal phenylketonuria: women's adherence to medical recommendations.苯丙酮尿症孕产妇的社会心理因素:女性对医疗建议的依从性
Am J Public Health. 1995 Dec;85(12):1636-41. doi: 10.2105/ajph.85.12.1636.