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远程医疗护理计划对帕金森病患者的评估。

Evaluation of a telemedical care programme for patients with Parkinson's disease.

机构信息

Department of Neurology, Charité - University Medicine Berlin, Campus Benjamin Franklin, 12200 Berlin, Germany.

出版信息

J Telemed Telecare. 2012 Sep;18(6):322-7. doi: 10.1258/jtt.2012.120105. Epub 2012 Aug 21.

Abstract

We reviewed a telemedicine-based care model for drug optimization in Parkinson's disease. In this model patients send video recordings made in the home to the treating team via the Internet. These serve as the basis for making therapeutic decisions, in particular drug adjustments. Data from 78 patients were analysed with respect to outcome, method acceptance and management of the procedure. During the 30-day telemedicine programme, the patients recorded an average of 3.2 videos per day. The patients' motor score on the Unified Parkinson's Disease Rating Scale (UPDRS) was 31 points at enrolment and three months after ICP termination it was significantly lower at 24 points (P < 0.01), i.e. there was less impairment. The patients rated their condition better at the end than at the beginning of the programme: on a 6-point scale, the mean rating at the beginning was 3.2 and the mean rating at the end was 2.8 (P < 0.001). A blinded investigator rated the patients' videos on the same scale: at the beginning the mean score was 3.0 and at the end it was 2.8 (P < 0.05). The information from the questionnaire showed overall acceptance and practicability of the method. Both patients' and neurologists' use of the method was high. The method seems to be feasible for therapy optimization in Parkinson's disease, and of particular interest for patients with complex conditions who do not necessarily have to undergo hospital treatment.

摘要

我们回顾了一种基于远程医疗的帕金森病药物优化护理模式。在该模式中,患者通过互联网将在家中录制的视频发送给治疗团队。这些视频作为做出治疗决策的基础,特别是药物调整。对 78 名患者的数据进行了分析,包括结果、方法接受度和程序管理。在 30 天的远程医疗计划中,患者平均每天记录 3.2 个视频。患者在入组时的统一帕金森病评定量表(UPDRS)的运动评分是 31 分,在 ICP 终止后三个月时明显降低到 24 分(P < 0.01),即损害程度较低。患者在计划结束时对自己的病情评价比开始时好:在 6 分制中,开始时的平均评分为 3.2,结束时的平均评分为 2.8(P < 0.001)。一位盲法调查员对患者的视频进行了相同的评分:开始时的平均得分为 3.0,结束时的平均得分为 2.8(P < 0.05)。问卷调查的信息显示该方法总体上被接受且具有实用性。患者和神经科医生都高度使用该方法。该方法似乎适用于帕金森病的治疗优化,特别是对那些病情复杂且不一定需要住院治疗的患者来说,更具吸引力。

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