School of Psychology, Xavier University, 3800 Victory Parkway, Cincinnati, OH, 45207, USA.
Cincinnati Children's Hospital Medical Center, 3333 Burnet Avenue, Cincinnati, OH, 45229, USA.
J Autism Dev Disord. 2021 Sep;51(9):3028-3038. doi: 10.1007/s10803-020-04764-1. Epub 2020 Oct 28.
Children with developmental disabilities require more medical experiences than typically-developing children and struggle to cooperate with healthcare encounters. Adaptive care plans, delivered by child life specialists, are individualized patient-centered plans created to address the challenges that children with developmental disabilities experience. The current study evaluated if adaptive care plans affect the psychosocial outcomes of children with ASD compared to those with other developmental disabilities. One-hundred and sixty children between 3 and 18 years of age (child's M = 8.10, SD = 3.75) participated. Although children with developmental disabilities who had adaptive care plans did not generally experience less psychosocial distress; children with ASD who had adaptive care plans experienced fewer challenges with anxiety and coping compared to children with ASD who did not have adaptive care plans.
患有发育障碍的儿童比一般发育正常的儿童需要更多的医疗体验，并难以配合医疗保健。儿童生活专家提供的适应性护理计划是针对发育障碍儿童所面临的挑战而制定的个性化以患者为中心的计划。本研究评估了适应性护理计划是否会影响 ASD 儿童与其他发育障碍儿童的心理社会结果。共有 160 名 3 至 18 岁的儿童（儿童的 M=8.10，SD=3.75）参与了该研究。尽管有适应性护理计划的发育障碍儿童通常不会经历较少的心理社会困扰；但与没有适应性护理计划的 ASD 儿童相比，有适应性护理计划的 ASD 儿童在焦虑和应对方面的挑战较少。
