Grahn G, Johnson J
Scand J Caring Sci. 1990;4(4):173-81. doi: 10.1111/j.1471-6712.1990.tb00069.x.
Giving of information to cancer patients and their family members regarding the disease, the treatment procedures and the adaptation process for living with the uncertainty inherent in a diagnosis of cancer, is as reported often not effective due to peoples' failure to understand. The impact of emotional stress creates communication difficulties. Information not based on assessed learning needs and considered individual differences as to learning militates against proper understanding. In developing an educational programme a study has been carried out aiming to assess learning needs. Cancer patients (n = 50), their family members (n = 20) and staff members within cancer care (n = 30) were asked to answer a need assessment questionnaire. The patients/family members indicated an extensive desire to learn about cancer and its ramifications, whereas staff members indicated that they seldom were approached regarding some questions in the area. The findings support the appropriateness for providing a structured patient education programme based on assessed needs and planned to meet individual differences in learning readiness and learning capabilities, that would complement the information currently given by staff members.
正如所报道的那样,由于人们理解困难,向癌症患者及其家属提供有关疾病、治疗程序以及适应癌症诊断所固有的不确定性的生活的信息往往是无效的。情绪压力的影响造成了沟通困难。不基于评估的学习需求且未考虑学习方面的个体差异的信息不利于正确理解。在制定一项教育计划时,开展了一项旨在评估学习需求的研究。癌症患者(n = 50)、他们的家属(n = 20)以及癌症护理领域的工作人员(n = 30)被要求回答一份需求评估问卷。患者/家属表示非常渴望了解癌症及其影响,而工作人员表示在该领域的一些问题上他们很少被咨询。这些发现支持了基于评估需求并计划满足学习准备和学习能力方面的个体差异来提供结构化患者教育计划的适宜性,该计划将补充工作人员目前提供的信息。