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应对癌症经历。二、评估一项针对癌症患者及其重要他人的教育与支持项目。

Coping with the cancer experience. II. Evaluating an education and support programme for cancer patients and their significant others.

作者信息

Grahn G, Danielson M

机构信息

Department of Caring Sciences, University of Lund, Sweden.

出版信息

Eur J Cancer Care (Engl). 1996 Sep;5(3):182-7. doi: 10.1111/j.1365-2354.1996.tb00231.x.

Abstract

As reported, cancer patients and their significant others need information promoting their understanding of events throughout the illness, and support in mobilizing coping strategies when they consider the situational demands to exceed their personal resources. In the present study the provision of information was merged into the field of education and combined with emotional support to facilitate efforts to cope with the cancer experience. A patient education programme entitled Learning to live with cancer was developed (part I) and evaluated (part II). Cancer patients and their significant others (n = 127) participated in group sessions. Open interviews organized around experiences of increased knowledge and understanding, decreased confusion and anxiety, and enhanced coping capacity related to participation in the programme were conducted with the participants. The interviews were analysed using the Grounded Theory approach. The findings indicate that supportive education, sensitively responsive to expressed learning needs and learning capability, has the power to promote proper understanding and facilitate coping efforts. Becoming familiar with facts and feelings reinforced confidence in evolving appropriate coping strategies for living with cancer.

摘要

据报道,癌症患者及其重要他人需要信息来增进他们对整个疾病过程中各种事件的理解,并且在他们认为情境需求超出个人应对资源时,需要获得支持以调动应对策略。在本研究中,信息的提供被纳入教育领域,并与情感支持相结合,以促进应对癌症经历的努力。开发了一个名为“学会与癌症共存”的患者教育项目(第一部分)并进行了评估(第二部分)。癌症患者及其重要他人(n = 127)参加了小组会议。围绕参与者因参与该项目而增加的知识和理解、减少的困惑和焦虑以及增强的应对能力等经历,组织了开放式访谈。使用扎根理论方法对访谈进行了分析。研究结果表明,对表达出的学习需求和学习能力敏感响应的支持性教育,有能力促进正确理解并推动应对努力。熟悉事实和感受增强了为与癌症共存制定适当应对策略的信心。

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