Grahn G
Department of Caring Sciences, University of Lund, Sweden.
Eur J Cancer Care (Engl). 1996 Sep;5(3):176-81. doi: 10.1111/j.1365-2354.1996.tb00230.x.
Cancer patients and their significant others need information to understand events throughout the course of cancer. They also need support in mobilizing coping strategies as situational demands exceed their personal resources. Following a learning-needs assessment, Swedish cancer patients and their significant others demonstrated a desire to learn not only about the disease and treatment procedures, but also about the adaptation process to live with the uncertainty inherent in a diagnosis of cancer. It has, however, repeatedly been reported that communication barriers exist, and that information does not always reach the intended target. Thus, to increase knowledge and facilitate efforts to cope with the cancer experience an approach was used in which the provision of information was combined with emotional support in an education course. Patients and their significant others (n = 149) were actively involved in developing the education and support programme together with extensive learning materials. The programme, entitled Learning to live with cancer, has its roots in the educational philosophy of human learning, and is based on the findings from the original learning-needs assessment.
癌症患者及其重要他人需要信息来了解癌症病程中的各种情况。当情境需求超出他们的个人资源时，他们在调动应对策略方面也需要支持。在进行学习需求评估后，瑞典癌症患者及其重要他人不仅表现出想要了解疾病和治疗程序的愿望，还想了解适应癌症诊断所固有的不确定性的生活过程。然而，多次报告表明存在沟通障碍，信息并不总是能传达给预期的目标人群。因此，为了增加知识并促进应对癌症经历的努力，在一个教育课程中采用了一种将提供信息与情感支持相结合的方法。患者及其重要他人（n = 149）与大量学习材料一起积极参与制定教育和支持计划。该计划名为“学会与癌症共存”，源于人类学习的教育理念，并基于最初学习需求评估的结果。
