Samadi Sayyed Ali, McConkey Roy
Institute of Nursing Research, University of Ulster, Newtownabbey BT37 0QB, UK.
Autism Res Treat. 2011;2011:145359. doi: 10.1155/2011/145359. Epub 2011 Dec 25.
Most research into Autism Spectrum Disorders has been conducted in affluent English-speaking countries which have extensive professional support services. This paper describes a series of investigations that was undertaken in Iran, and these findings, together with reviews of research in other low-income countries, are used to identify key lessons in three areas of service provision of particular relevance to developing countries with scarce professional resources: first, the issues to be considered in establishing the prevalence of the condition nationally; second, identification of parental understanding of ASD and the impact it has on them as carers; third, the education and training that could be provided to families when professional supports are sparse. It is concluded that culturally sensitive, parental support strategies must be central to the planning and development of services. Moreover, future research should further elucidate the needs of families and evaluate the impact of culturally tailored interventions designed to promote the children's development and overall family quality of life.
大多数关于自闭症谱系障碍的研究都是在拥有广泛专业支持服务的富裕英语国家进行的。本文描述了在伊朗进行的一系列调查,并利用这些调查结果以及对其他低收入国家研究的综述,来确定在专业资源稀缺的发展中国家,与服务提供特别相关的三个领域的关键经验教训:第一,在全国范围内确定该病症患病率时需要考虑的问题;第二,确定父母对自闭症谱系障碍的理解及其作为照顾者所受的影响;第三,在专业支持匮乏时可以向家庭提供的教育和培训。结论是,具有文化敏感性的父母支持策略必须成为服务规划和发展的核心。此外,未来的研究应进一步阐明家庭的需求,并评估旨在促进儿童发展和提高家庭整体生活质量的文化定制干预措施的影响。