自闭症谱系障碍青少年和成人母亲的日常经历。
Daily experiences among mothers of adolescents and adults with autism spectrum disorder.
机构信息
Waisman Center, University of Wisconsin-Madison, Madison, WI 53705, USA.
出版信息
J Autism Dev Disord. 2010 Feb;40(2):167-78. doi: 10.1007/s10803-009-0844-y. Epub 2009 Aug 5.
Abstract
In the present study, 96 co-residing mothers of adolescents and adults with an autism spectrum disorder (ASD) participated in an 8-day diary study and reported on their daily experiences. In comparison with a nationally representative sample of mothers of children without disabilities, mothers of adolescent and adult children with ASD spent significantly more time providing childcare and doing chores, and less time in leisure activities. Fatigue, arguments, avoided arguments, and stressful events were also more common among mothers of individuals with ASD. However, mothers of individuals with ASD reported similar levels of positive interactions and volunteerism as the comparison group. Daily experiences were subsequently related to well-being in both groups. These findings highlight the need for family support services.
摘要
在本研究中，96 位共同居住的青少年和成年自闭症谱系障碍（ASD）患者的母亲参与了为期 8 天的日记研究，并报告了她们的日常经历。与残疾儿童的全国代表性母亲样本相比，ASD 青少年和成年子女的母亲花费更多的时间照顾孩子和做家务，而休闲活动的时间较少。疲劳、争吵、避免争吵和有压力的事件在 ASD 患者的母亲中也更为常见。然而，ASD 患者的母亲报告的积极互动和志愿服务水平与对照组相似。随后，两组的日常经历都与幸福感有关。这些发现强调了家庭支持服务的必要性。
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