Nilsen Thomas S, Brandt Ingunn, Magnus Per, Harris Jennifer R
Division of Epidemiology, Norwegian Institute of Public Health, Oslo, Norway.
Twin Res Hum Genet. 2012 Dec;15(6):775-80. doi: 10.1017/thg.2012.57. Epub 2012 Sep 5.
Norway has a long-standing tradition in twin research, but the data collected in several population-based twin studies were not coordinated centrally or easily accessible to the scientific community. In 2009, the Norwegian Twin Registry was established at the Norwegian Institute of Public Health (NIPH) in Oslo with the purpose of creating a single research resource for Norwegian twin data. As of today, the Norwegian Twin Registry contains 47,989 twins covering birth years 1895-1960 and 1967-1979; 31,440 of these twins consented to participate in health-related research. In addition, DNA from approximately 4,800 of the twins is banked at the NIPH biobank and new studies are continually adding new data to the registry. The value of the Norwegian twin data is greatly enhanced by the linkage opportunities offered by Norway's many nationwide registries, spanning a broad array of medical, demographic, and socioeconomic information.
挪威在双胞胎研究方面有着悠久的传统,但在几项基于人群的双胞胎研究中收集的数据并未进行集中协调,科学界也难以获取。2009年,挪威双胞胎登记处(Norwegian Twin Registry)在奥斯陆的挪威公共卫生研究所(Norwegian Institute of Public Health, NIPH)成立,目的是为挪威双胞胎数据创建单一的研究资源。截至目前,挪威双胞胎登记处包含47,989对双胞胎,涵盖1895年至1960年以及1967年至1979年出生的;其中31,440对双胞胎同意参与健康相关研究。此外,约4,800对双胞胎的DNA保存在挪威公共卫生研究所生物样本库中,新的研究也在不断为登记处增添新数据。挪威众多全国性登记处提供的关联机会极大地提升了挪威双胞胎数据的价值,这些登记处涵盖了广泛的医学、人口统计学和社会经济信息。