Beng Tan Seng, Guan Ng Chong, Seang Lim Kheng, Pathmawathi Subramaniam, Ming Moy Foong, Jane Lim Ee, Chin Loh Ee, Loong Lam Chee
1Department of Medicine, Faculty of Medicine, University Malaya Medical Center, Lembah Pantai, Kuala Lumpur, Malaysia.
Am J Hosp Palliat Care. 2014 Feb;31(1):45-56. doi: 10.1177/1049909112458721. Epub 2012 Sep 5.
A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 20 adult palliative care inpatients of University Malaya Medical Centre. The results were thematically analyzed. Ten basic themes were generated (1) loss and change → differential suffering, (2) care dependence → dependent suffering, (3) family stress → empathic suffering, (4) disease and dying → terminal suffering, (5) health care staff encounters → interactional suffering, (6) hospital environment → environmental suffering, (7) physical symptoms → sensory suffering, (8) emotional reactions → emotional suffering, (9) cognitive reactions → cognitive suffering, and (10) spiritual reactions → spiritual suffering. An existential-experiential model of suffering was conceptualized from the analysis. This model may inform the development of interventions in the prevention and management of suffering.
我们进行了一项定性研究，采用半结构化访谈来探究马来西亚大学医学中心20名成年姑息治疗住院患者的痛苦经历。对结果进行了主题分析。共产生了十个基本主题：(1) 丧失与变化→差异痛苦，(2) 护理依赖→依赖痛苦，(3) 家庭压力→共情痛苦，(4) 疾病与死亡→终末期痛苦，(5) 医护人员接触→互动痛苦，(6) 医院环境→环境痛苦，(7) 身体症状→感官痛苦，(8) 情绪反应→情绪痛苦，(9) 认知反应→认知痛苦，以及(10) 精神反应→精神痛苦。通过分析构建了一个痛苦的存在-体验模型。该模型可为痛苦预防和管理干预措施的制定提供参考。
