马来西亚姑息治疗非正式照护者的痛苦经历：一项主题分析。
The experiences of suffering of palliative care informal caregivers in Malaysia: a thematic analysis.
作者信息
Beng Tan Seng, Guan Ng Chong, Seang Lim Kheng, Pathmawathi Subramaniam, Ming Moy Foong, Jane Lim Ee, Chin Loh Ee, Loong Lam Chee
机构信息
Department of Medicine, Faculty of Medicine, University Malaya Medical Center, Kuala Lumpur, Malaysia.
出版信息
Am J Hosp Palliat Care. 2013 Aug;30(5):473-89. doi: 10.1177/1049909112473633. Epub 2013 Jan 21.
A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering in 15 palliative care informal caregivers in University Malaya Medical Centre. The data were thematically analyzed. Seven basic themes were generated (1) empathic suffering, (2) anticipatory grief, (3) obsessive-compulsive suffering, (4) helpless-powerless suffering, (5) obligatory suffering, (6) impedimental suffering, and (7) repercussion suffering. A model of compassion suffering was conceptualized from the analysis. This model may serve as a guide in the assessment and management of suffering in palliative care informal caregivers.
开展了一项定性研究，通过半结构化访谈来探究马来西亚大学医学中心15名姑息治疗非专业照料者的痛苦经历。对数据进行了主题分析。得出了七个基本主题：（1）共情痛苦，（2）预期性悲伤，（3）强迫性痛苦，（4）无助-无力痛苦，（5）义务性痛苦，（6）阻碍性痛苦，以及（7）反响性痛苦。从分析中构建了一个同情性痛苦模型。该模型可作为评估和管理姑息治疗非专业照料者痛苦的指南。
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