Anson O, Weizman Z, Zeevi N
Department of Sociology of Health, Faculty of Health Sciences, Ben-Gurion, University of the Negev, Beer-Sheva, Israel.
Pediatrics. 1990 Jan;85(1):98-103.
Parents of 43 children with celiac disease, 28% of whom were classified as noncompliant, were interviewed. The knowledge, attitudes, and dietary behavior of parents of compliant patients were compared with those of noncompliant patients. Parents of compliant patients are better educated and from a higher social class. Although objective knowledge of the disease is similar in both groups, parents of compliant patients consider themselves adequately informed about the disease and are better able to choose gluten-free items from a menu. Parents of compliant patients are less worried about health in general but are more concerned with possible adverse effects celiac disease might have on the future of their children. Parents of both groups are not significantly different with regard to their understanding of the diet, the tendency to use medical care, and the perception of barriers to compliance or social support. It was concluded that to increase dietary compliance in celiac patients, parents should be guided mainly by the following three purposes: (1) enhancing their subjective evaluation of their own knowledge of celiac disease; (2) improving their practical ability to handle a menu; (3) increasing their anxiety regarding possible long-term adverse effects.
研究人员对43名患有乳糜泻的儿童的家长进行了访谈，其中28%的家长被归类为不依从。将依从性好的患者的家长与不依从的患者的家长在知识、态度和饮食行为方面进行了比较。依从性好的患者的家长受教育程度更高，来自更高的社会阶层。虽然两组家长对该疾病的客观知识相似，但依从性好的患者的家长认为自己对该疾病有足够的了解，并且更有能力从菜单中选择无麸质食品。依从性好的患者的家长总体上对健康的担忧较少，但更关注乳糜泻可能对其子女未来产生的不良影响。两组家长在对饮食的理解、使用医疗护理的倾向以及对依从性障碍或社会支持的认知方面没有显著差异。研究得出结论，为了提高乳糜泻患者的饮食依从性，家长应主要遵循以下三个目标：（1）提高他们对自身乳糜泻知识的主观评价；（2）提高他们处理菜单的实际能力；（3）增加他们对可能的长期不良影响的焦虑。
