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Technology-based self-care methods of improving antiretroviral adherence: a systematic review.基于技术的自我护理方法改善抗逆转录病毒药物依从性:系统评价。
PLoS One. 2011;6(11):e27533. doi: 10.1371/journal.pone.0027533. Epub 2011 Nov 30.
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Life expectancy of persons receiving combination antiretroviral therapy in low-income countries: a cohort analysis from Uganda.低收入国家接受联合抗逆转录病毒疗法者的预期寿命:乌干达的一项队列分析。
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Perceived Internet health literacy of HIV-positive people through the provision of a computer and Internet health education intervention.通过提供计算机和互联网健康教育干预措施,了解 HIV 阳性人群的互联网健康素养。
Health Info Libr J. 2010 Dec;27(4):295-303. doi: 10.1111/j.1471-1842.2010.00898.x.
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The "meaningful use" regulation for electronic health records.电子健康记录的“有意义使用”规定。
N Engl J Med. 2010 Aug 5;363(6):501-4. doi: 10.1056/NEJMp1006114. Epub 2010 Jul 13.
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Antiretroviral therapy and management of HIV infection.抗逆转录病毒疗法和 HIV 感染管理。
Lancet. 2010 Jul 3;376(9734):49-62. doi: 10.1016/S0140-6736(10)60676-9.
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The future of health information technology in the patient-centered medical home.以患者为中心的医疗之家的未来的健康信息技术。
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Common elements in self-management of HIV and other chronic illnesses: an integrative framework.艾滋病病毒及其他慢性病自我管理的共同要素:一个综合框架
AIDS Care. 2009 Oct;21(10):1321-34. doi: 10.1080/09540120902803158.
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Bridging the digital divide by increasing computer and cancer literacy: community technology centers for head-start parents and families.通过提高计算机和癌症知识水平弥合数字鸿沟:为起步阶段的家长和家庭设立社区技术中心。
J Health Commun. 2009 Apr-May;14(3):228-45. doi: 10.1080/10810730902805804.
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Life expectancy of individuals on combination antiretroviral therapy in high-income countries: a collaborative analysis of 14 cohort studies.高收入国家接受联合抗逆转录病毒治疗的个体的预期寿命:14项队列研究的协作分析
Lancet. 2008 Jul 26;372(9635):293-9. doi: 10.1016/S0140-6736(08)61113-7.
10
The role of self-efficacy in HIV treatment adherence: validation of the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES).自我效能感在艾滋病病毒治疗依从性中的作用:艾滋病病毒治疗依从性自我效能量表(HIV-ASES)的验证
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弥合艾滋病护理中的数字鸿沟:一项关于iPod个人健康记录的试点研究。

Bridging the digital divide in HIV care: a pilot study of an iPod personal health record.

作者信息

Luque Amneris E, Corales Roberto, Fowler Richard J, DiMarco Jamie, van Keken Adjuah, Winters Paul, Keefer Michael C, Fiscella Kevin

机构信息

Department of Medicine, Infectious Disease Division, University of Rochester School of Medicine & Dentistry, Rochester, NY, USA.

出版信息

J Int Assoc Provid AIDS Care. 2013 Mar-Apr;12(2):117-21. doi: 10.1177/1545109712457712. Epub 2012 Sep 10.

DOI:10.1177/1545109712457712
PMID:22965693
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4679286/
Abstract

BACKGROUND

Persons living with HIV (PLWH) need practical tools to self-manage their condition.

METHODS

We conducted a proof-of-concept study among PLWH to assess whether patients could learn to use a personal health record (PHR) on a hand-held device (iPod Touch) to manage their condition. We began individual trainings and later adapted this to group training. We assessed usability, acceptability and also effects on self-efficacy for treatment adherence using the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES).

RESULTS

Nine PLWH participated in the individual training and 29 participated in the group sessions. The participants were largely middle aged, low-income and of racial/ethnic minorities. The sessions were well attended and participants fully engaged in tasks and shared learning. Most participants stated they intended to use the PHR and reported improved self-efficacy in treatment adherence (P = .05) particularly on the integration of treatment adherence into one's routine (P < .02).

CONCLUSIONS

Training PLWH in use of a handheld PHR shows promise.

摘要

背景

艾滋病病毒感染者(PLWH)需要实用工具来自我管理病情。

方法

我们在艾滋病病毒感染者中开展了一项概念验证研究,以评估患者是否能够学会使用手持设备(iPod Touch)上的个人健康记录(PHR)来管理病情。我们首先进行了个体培训,后来将其调整为小组培训。我们使用艾滋病治疗依从性自我效能量表(HIV-ASES)评估了可用性、可接受性以及对治疗依从性自我效能的影响。

结果

9名艾滋病病毒感染者参加了个体培训,29名参加了小组培训。参与者大多为中年、低收入的少数种族/族裔。培训课程的出勤率很高,参与者充分参与任务并分享学习经验。大多数参与者表示他们打算使用个人健康记录,并报告治疗依从性的自我效能有所提高(P = 0.05),特别是在将治疗依从性融入日常生活方面(P < 0.02)。

结论

对艾滋病病毒感染者进行手持个人健康记录使用培训显示出前景。