弥合艾滋病护理中的数字鸿沟：一项关于iPod个人健康记录的试点研究。
Bridging the digital divide in HIV care: a pilot study of an iPod personal health record.
作者信息
Luque Amneris E, Corales Roberto, Fowler Richard J, DiMarco Jamie, van Keken Adjuah, Winters Paul, Keefer Michael C, Fiscella Kevin
机构信息
Department of Medicine, Infectious Disease Division, University of Rochester School of Medicine & Dentistry, Rochester, NY, USA.
出版信息
J Int Assoc Provid AIDS Care. 2013 Mar-Apr;12(2):117-21. doi: 10.1177/1545109712457712. Epub 2012 Sep 10.
Abstract
BACKGROUND
Persons living with HIV (PLWH) need practical tools to self-manage their condition.
METHODS
We conducted a proof-of-concept study among PLWH to assess whether patients could learn to use a personal health record (PHR) on a hand-held device (iPod Touch) to manage their condition. We began individual trainings and later adapted this to group training. We assessed usability, acceptability and also effects on self-efficacy for treatment adherence using the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES).
RESULTS
Nine PLWH participated in the individual training and 29 participated in the group sessions. The participants were largely middle aged, low-income and of racial/ethnic minorities. The sessions were well attended and participants fully engaged in tasks and shared learning. Most participants stated they intended to use the PHR and reported improved self-efficacy in treatment adherence (P = .05) particularly on the integration of treatment adherence into one's routine (P < .02).
CONCLUSIONS
Training PLWH in use of a handheld PHR shows promise.
摘要
背景
艾滋病病毒感染者（PLWH）需要实用工具来自我管理病情。
方法
我们在艾滋病病毒感染者中开展了一项概念验证研究，以评估患者是否能够学会使用手持设备（iPod Touch）上的个人健康记录（PHR）来管理病情。我们首先进行了个体培训，后来将其调整为小组培训。我们使用艾滋病治疗依从性自我效能量表（HIV-ASES）评估了可用性、可接受性以及对治疗依从性自我效能的影响。
结果
9名艾滋病病毒感染者参加了个体培训，29名参加了小组培训。参与者大多为中年、低收入的少数种族/族裔。培训课程的出勤率很高，参与者充分参与任务并分享学习经验。大多数参与者表示他们打算使用个人健康记录，并报告治疗依从性的自我效能有所提高（P = 0.05），特别是在将治疗依从性融入日常生活方面（P < 0.02）。
结论
对艾滋病病毒感染者进行手持个人健康记录使用培训显示出前景。
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