相似文献
1
Beneficence, clinical urgency, and the return of individual research results to relatives.
Am J Bioeth. 2012;12(10):9-10. doi: 10.1080/15265161.2012.699153.
2
Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.
Am J Bioeth. 2012;12(10):10-2. doi: 10.1080/15265161.2012.699145.
3
Risks to relatives in genomic research: a duty to warn?
Am J Bioeth. 2012;12(10):12-4. doi: 10.1080/15265161.2012.699157.
4
Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.
Am J Bioeth. 2012;12(10):16-7. doi: 10.1080/15265161.2012.699588.
5
Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".
Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.
6
Blurring boundaries.
Am J Bioeth. 2012;12(10):26-7. doi: 10.1080/15265161.2012.699160.
7
Disclosure/disruption: considering why not to disclose genetic information after death.
Am J Bioeth. 2012;12(10):14-6. doi: 10.1080/15265161.2012.699148.
8
Rethinking clinical risk for DNA sequencing.
Am J Bioeth. 2012;12(10):24-6. doi: 10.1080/15265161.2012.699152.
9
Disclosing results to genomic research participants: differences that matter.
Am J Bioeth. 2012;12(10):20-2. doi: 10.1080/15265161.2012.699149.
10
The ever-evolving concept of clinical significance and the potential for sins of omission in genetic research.
Am J Bioeth. 2012;12(10):22-4. doi: 10.1080/15265161.2012.699142.
引用本文的文献
1
An Examination of the Ethical and Legal Limits in Implementing "Traceback Testing" for Deceased Patients.
J Law Med Ethics. 2022;50(4):818-832. doi: 10.1017/jme.2023.23.
2
Should Health Systems Share Genetic Findings With At-Risk Relatives When the Proband Is Deceased? Interviews With Individuals Diagnosed With Lynch Syndrome.
J Patient Cent Res Rev. 2022 Oct 18;9(4):282-289. doi: 10.17294/2330-0698.1945. eCollection 2022 Fall.
3
Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.
BMC Med Ethics. 2022 Mar 18;23(1):27. doi: 10.1186/s12910-022-00767-y.
4
Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.
J Law Med Ethics. 2015 Fall;43(3):476-85. doi: 10.1111/jlme.12290.
5
Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.
J Law Med Ethics. 2015 Fall;43(3):440-63. doi: 10.1111/jlme.12288.
6
Family decision maker perspectives on the return of genetic results in biobanking research.
Genet Med. 2016 Jan;18(1):82-8. doi: 10.1038/gim.2015.38. Epub 2015 Apr 9.
7
Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".
Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.
本文引用的文献
1
Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.
Am J Bioeth. 2012;12(10):1-8. doi: 10.1080/15265161.2012.699138.
2
Familial communication of research results: a need to know?
J Law Med Ethics. 2011 Winter;39(4):605-13. doi: 10.1111/j.1748-720X.2011.00627.x.
3
Management of medullary thyroid carcinoma and MEN2 syndromes in childhood.
Nat Rev Endocrinol. 2011 Aug 23;7(10):596-607. doi: 10.1038/nrendo.2011.139.
4
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time.
Genet Med. 2011 Jun;13(6):499-504. doi: 10.1097/GIM.0b013e318220aaba.
5
Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy.
Hum Mutat. 2011 Aug;32(8):861-7. doi: 10.1002/humu.21518. Epub 2011 Jun 30.
6
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group.
Circ Cardiovasc Genet. 2010 Dec;3(6):574-80. doi: 10.1161/CIRCGENETICS.110.958827.
7
Communicating genetic risk information within families: a review.
Fam Cancer. 2010 Dec;9(4):691-703. doi: 10.1007/s10689-010-9380-3.
8
Offering individual genetic research results: context matters.
Sci Transl Med. 2010 Jun 30;2(38):38cm20. doi: 10.1126/scitranslmed.3000952.
Zotero 插件