向亲属披露死者的研究结果违反了《健康保险流通与责任法案》隐私规则。 - Suppr

Suppr

超能文献

Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.

作者信息

Rothstein Mark A

机构信息

University of Louisville School of Medicine, KY 40202, USA.

出版信息

Am J Bioeth. 2012;12(10):16-7. doi: 10.1080/15265161.2012.699588.

DOI:10.1080/15265161.2012.699588

PMID:22974022

Abstract

摘要

相似文献

Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.向亲属披露死者的研究结果违反了《健康保险流通与责任法案》隐私规则。

Am J Bioeth. 2012;12(10):16-7. doi: 10.1080/15265161.2012.699588.

Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.通过一项合格的披露政策，向已故参与者的亲属披露个人基因研究结果。

Am J Bioeth. 2012;12(10):10-2. doi: 10.1080/15265161.2012.699145.

Disclosing results to genomic research participants: differences that matter.向基因组研究参与者披露结果：重要的差异。

Am J Bioeth. 2012;12(10):20-2. doi: 10.1080/15265161.2012.699149.

Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".对关于“基因组遗传：向已故参与者的亲属披露全外显子组测序的个体研究结果”的公开同行评论的回应

Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.

Risks to relatives in genomic research: a duty to warn?基因组研究中对亲属的风险：有告知义务吗？

Am J Bioeth. 2012;12(10):12-4. doi: 10.1080/15265161.2012.699157.

Beneficence, clinical urgency, and the return of individual research results to relatives.善行、临床紧迫性以及将个体研究结果告知亲属

Am J Bioeth. 2012;12(10):9-10. doi: 10.1080/15265161.2012.699153.

Blurring boundaries.模糊界限。

Am J Bioeth. 2012;12(10):26-7. doi: 10.1080/15265161.2012.699160.

Disclosure/disruption: considering why not to disclose genetic information after death.披露/破坏：思考死后不披露基因信息的原因。

Am J Bioeth. 2012;12(10):14-6. doi: 10.1080/15265161.2012.699148.

Rethinking clinical risk for DNA sequencing.重新思考DNA测序的临床风险。

Am J Bioeth. 2012;12(10):24-6. doi: 10.1080/15265161.2012.699152.

Clinically significant? Depends on whom you ask.具有临床意义？这取决于你问谁。

Am J Bioeth. 2012;12(10):18-20. doi: 10.1080/15265161.2012.699159.

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Return of Results in Genomic Research Using Large-Scale or Whole Genome Sequencing: Toward a New Normal.使用大规模或全基因组测序进行基因组研究的结果回报：迈向新常态。

Annu Rev Genomics Hum Genet. 2023 Aug 25;24:393-414. doi: 10.1146/annurev-genom-101122-103209. Epub 2023 Mar 13.

An Examination of the Ethical and Legal Limits in Implementing "Traceback Testing" for Deceased Patients.对实施已故患者“溯源检测”的伦理和法律限制的考察。

J Law Med Ethics. 2022;50(4):818-832. doi: 10.1017/jme.2023.23.

Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.与在世和已故研究参与者的亲属分享基因组研究结果的实用工具。

J Law Med Ethics. 2018 Mar;46(1):87-109. doi: 10.1177/1073110518766024. Epub 2018 Mar 27.

Next-Generation Sequencing and the Return of Results.下一代测序与结果反馈

Cold Spring Harb Perspect Med. 2016 Oct 3;6(10):a026724. doi: 10.1101/cshperspect.a026724.

Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank.关于向研究参与者亲属反馈基因组结果的偏好，包括参与者死亡后：癌症生物样本库的实证结果

J Law Med Ethics. 2015 Fall;43(3):464-75. doi: 10.1111/jlme.12289.

Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.向研究参与者的亲属反馈基因组结果：分析与建议。

J Law Med Ethics. 2015 Fall;43(3):440-63. doi: 10.1111/jlme.12288.

Return of individual research results and incidental findings: facing the challenges of translational science.个体研究结果和偶然发现的返还：直面转化科学的挑战。

Annu Rev Genomics Hum Genet. 2013;14:557-77. doi: 10.1146/annurev-genom-091212-153506. Epub 2013 Jul 15.

Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.

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