Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".
作者信息
Hull Sara Chandros, Chan Ben, Biesecker Leslie G, Berkman Benjamin E
机构信息
National Human Genome Research Institute.
出版信息
Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.
Abstract
摘要
相似文献
1
Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".对关于“基因组遗传：向已故参与者的亲属披露全外显子组测序的个体研究结果”的公开同行评论的回应
Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.
2
Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.基因组遗传：向已故参与者的亲属披露全外显子组测序的个体研究结果。
Am J Bioeth. 2012;12(10):1-8. doi: 10.1080/15265161.2012.699138.
3
Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.通过一项合格的披露政策，向已故参与者的亲属披露个人基因研究结果。
Am J Bioeth. 2012;12(10):10-2. doi: 10.1080/15265161.2012.699145.
4
Disclosing results to genomic research participants: differences that matter.向基因组研究参与者披露结果：重要的差异。
Am J Bioeth. 2012;12(10):20-2. doi: 10.1080/15265161.2012.699149.
5
Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.向亲属披露死者的研究结果违反了《健康保险流通与责任法案》隐私规则。
Am J Bioeth. 2012;12(10):16-7. doi: 10.1080/15265161.2012.699588.
6
Risks to relatives in genomic research: a duty to warn?基因组研究中对亲属的风险：有告知义务吗？
Am J Bioeth. 2012;12(10):12-4. doi: 10.1080/15265161.2012.699157.
7
Beneficence, clinical urgency, and the return of individual research results to relatives.善行、临床紧迫性以及将个体研究结果告知亲属
Am J Bioeth. 2012;12(10):9-10. doi: 10.1080/15265161.2012.699153.
8
Rethinking clinical risk for DNA sequencing.重新思考DNA测序的临床风险。
Am J Bioeth. 2012;12(10):24-6. doi: 10.1080/15265161.2012.699152.
9
Blurring boundaries.模糊界限。
Am J Bioeth. 2012;12(10):26-7. doi: 10.1080/15265161.2012.699160.
10
Disclosure/disruption: considering why not to disclose genetic information after death.披露/破坏：思考死后不披露基因信息的原因。
Am J Bioeth. 2012;12(10):14-6. doi: 10.1080/15265161.2012.699148.
本文引用的文献
1
The ever-evolving concept of clinical significance and the potential for sins of omission in genetic research.临床意义这一不断演变的概念以及基因研究中遗漏错误的可能性。
Am J Bioeth. 2012;12(10):22-4. doi: 10.1080/15265161.2012.699142.
2
Disclosing results to genomic research participants: differences that matter.向基因组研究参与者披露结果：重要的差异。
Am J Bioeth. 2012;12(10):20-2. doi: 10.1080/15265161.2012.699149.
3
Clinically significant? Depends on whom you ask.具有临床意义？这取决于你问谁。
Am J Bioeth. 2012;12(10):18-20. doi: 10.1080/15265161.2012.699159.
4
Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.向亲属披露死者的研究结果违反了《健康保险流通与责任法案》隐私规则。
Am J Bioeth. 2012;12(10):16-7. doi: 10.1080/15265161.2012.699588.
5
Disclosure/disruption: considering why not to disclose genetic information after death.披露/破坏：思考死后不披露基因信息的原因。
Am J Bioeth. 2012;12(10):14-6. doi: 10.1080/15265161.2012.699148.
6
Risks to relatives in genomic research: a duty to warn?基因组研究中对亲属的风险：有告知义务吗？
Am J Bioeth. 2012;12(10):12-4. doi: 10.1080/15265161.2012.699157.
7
Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.通过一项合格的披露政策，向已故参与者的亲属披露个人基因研究结果。
Am J Bioeth. 2012;12(10):10-2. doi: 10.1080/15265161.2012.699145.
8
Beneficence, clinical urgency, and the return of individual research results to relatives.善行、临床紧迫性以及将个体研究结果告知亲属
Am J Bioeth. 2012;12(10):9-10. doi: 10.1080/15265161.2012.699153.
9
Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.基因组遗传：向已故参与者的亲属披露全外显子组测序的个体研究结果。
Am J Bioeth. 2012;12(10):1-8. doi: 10.1080/15265161.2012.699138.
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