Department of Community Health Sciences, Institute for Public Health, University of Calgary, Calgary, Alberta, Canada.
J Trauma Acute Care Surg. 2012 Nov;73(5):1332-9. doi: 10.1097/TA.0b013e31825c4d57.
To deliver patient-centered trauma care, we must capture patient and family experiences with the services they receive. We developed and pilot tested a survey to measure patient and family experiences with major injury care.
We conducted a structured literature review and focus groups to generate survey items. We pilot tested the survey at a Level I trauma center and assessed feasibility of implementation and construct validity with Spearman's correlation coefficients. Open ended questions were qualitatively analyzed to explore whether responses corroborated survey content.
We developed a survey with two parts: acute care component (46 items) and post-acute care component (27 items) with nine domains. We offered the survey (acute care component offered before hospital discharge, post-acute care component offered 1-7 months after discharge) to 170 patients/families, of whom 134 (79%) responded. Patients were primarily male (73%) with major injuries (median Injury Severity Score, 18; interquartile range, 16-25). Overall, respondents for both the acute care and post-acute care components of the survey reported being completely (47% vs. 26%), very (37% vs. 38%), or mostly (16% vs. 21%) satisfied with their injury care, whereas a minority reported being slightly (0% vs. 9%) or very (0% vs. 6%) dissatisfied (p = 0.002 Fischer's exact test). Most survey items were significantly correlated with overall satisfaction (46 of 60 items). Almost all qualitatively identified themes matched survey domains, adding support to the survey content.
This pilot study demonstrates the feasibility of implementing a survey to capture patient and family experiences associated with major injury care and provides preliminary evidence of the instrument's content and construct validity.
Epidemiologic study, level III.
为了提供以患者为中心的创伤护理，我们必须了解患者和家属对所接受服务的体验。我们开发并试点测试了一项调查，以衡量患者和家属对严重创伤护理的体验。
我们进行了结构化文献回顾和焦点小组讨论，以生成调查项目。我们在一级创伤中心试点测试了该调查，并通过斯皮尔曼相关系数评估了实施的可行性和结构有效性。通过定性分析开放式问题，探讨响应是否与调查内容相符。
我们开发了一个包含两部分的调查：急性护理部分（46 项）和急性后护理部分（出院后 1-7 个月提供，27 项），共有 9 个领域。我们向 170 名患者/家属提供了调查（急性护理部分在出院前提供，急性后护理部分在出院后 1-7 个月提供），其中 134 名（79%）做出了回应。患者主要为男性（73%），有严重损伤（中位数损伤严重程度评分，18；四分位间距，16-25）。总体而言，调查的急性护理和急性后护理部分的受访者报告对其创伤护理完全（47%对 26%）、非常（37%对 38%）或大部分（16%对 21%）满意，而少数报告略有（0%对 9%）或非常（0%对 6%）不满意（p=0.002 费舍尔精确检验）。大多数调查项目与总体满意度显著相关（60 项中的 46 项）。几乎所有定性识别的主题都与调查领域相匹配，为调查内容提供了支持。
这项试点研究表明，实施一项调查以捕捉与严重创伤护理相关的患者和家属体验是可行的，并初步提供了该工具的内容和结构有效性的证据。
流行病学研究，三级。
