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与智力障碍作斗争以实现母性——瑞典女性经历的定性研究。

Struggling for motherhood with an intellectual disability--a qualitative study of women's experiences in Sweden.

机构信息

Department of Women's and Children's Health, Uppsala University, 751 85 Uppsala, Sweden.

出版信息

Midwifery. 2013 Jun;29(6):698-704. doi: 10.1016/j.midw.2012.06.014. Epub 2012 Sep 13.

DOI:10.1016/j.midw.2012.06.014
PMID:22981380
Abstract

OBJECTIVE

to gain a deeper understanding of the experiences of childbearing in women with intellectual disabililty (ID).

DESIGN/SETTING: ten women with ID, who had given birth within seven years, were interviewed twice and data were analysed with content analysis.

FINDINGS

the overarching theme was: Struggling for motherhood with an ID. The significance of having an intellectual disability became evident when the women encountered mixed reactions from partners and relatives, who sometimes suggested an induced abortion. The women disclosed their diagnosis if they believed it was beneficial for them. Throughout the process the women also felt anxious and distressed about the custody of the child. Women experienced the pregnancy as a physical and psychological transition. It was mostly a happy and responsible life event, and the women were aware of physical signs in their bodies and contact with the unborn child. Parent education was considered important but not adequately adapted to their needs. The women described the delivery as hard and painful work, sometimes difficult to understand and they had different strategies to handle the pain and strain of labour. The child was welcomed with warmth and curiosity by the women, who cared for and breast fed the child even if the hospital environment could be confusing and continued custody not taken for granted.

CONCLUSIONS

women with ID struggle for motherhood and fear losing custody of the child. Professionals need to identify and support these women, who may not always disclose their diagnosis. Since pregnancy, delivery and the transition into motherhood can be difficult to understand, information and support should be better tailored to their needs.

摘要

目的

深入了解智障女性的生育经历。

设计/环境:对 10 名在 7 年内分娩的智障女性进行了两次访谈,采用内容分析法对数据进行分析。

结果

总体主题是:智障女性争取做母亲。当这些女性的伴侣和亲属反应不一,有时建议她们进行人工流产时,智障对她们的影响就变得明显了。如果她们认为对自己有益,这些女性会透露自己的诊断。在整个过程中,这些女性还对孩子的监护权感到焦虑和苦恼。女性经历怀孕是身体和心理上的转变。这在大多数情况下是一件快乐而负责任的生活事件,女性会意识到身体上的变化,并与未出生的孩子接触。人们认为家长教育很重要,但并没有充分适应她们的需求。这些女性将分娩描述为艰苦而痛苦的工作,有时难以理解,而且她们有不同的策略来应对分娩的痛苦和紧张。这些女性满怀热情和好奇地迎接孩子,即使医院的环境可能令人困惑,而且继续监护权也不一定能得到保障,她们仍会照顾和母乳喂养孩子。

结论

智障女性为做母亲而奋斗,担心失去孩子的监护权。专业人员需要识别和支持这些可能不会始终透露自己诊断的女性。由于怀孕、分娩和过渡到母亲身份可能难以理解,因此信息和支持应该更好地满足她们的需求。

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