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临床医生报告的为智力和发育障碍女性提供围产期护理的障碍。

Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities.

机构信息

Lurie Institute for Disability Policy, Heller School for Social Policy and Management, Brandeis University, Waltham, MA, USA.

Department of Obstetrics and Gynecology, University of Massachusetts Medical School, UMass Memorial Medical Center, Worcester , MA, USA.

出版信息

J Intellect Dev Disabil. 2023;48(1):12-22. doi: 10.3109/13668250.2022.2086110. Epub 2022 Jun 30.

Abstract

BACKGROUND

Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities.

METHOD

We conducted semi-structured interviews and one focus group with US obstetric care clinicians (n=17). We used a content analysis approach to code data and analyse them for larger themes and relationships.

RESULTS

The majority of participants were white, non-Hispanic, and female. Participants reported barriers providing care to pregnant women with intellectual and developmental disabilities across individual (e.g., communication challenges), practice (e.g., identification of disability status), and system levels (e.g., lack of clinician training).

CONCLUSIONS

Clinician training and evidence-based guidelines for perinatal care of women with intellectual and developmental disabilities as well as services and supports during pregnancy are needed.

摘要

背景

研究表明,智力和发育障碍女性发生不良妊娠结局的风险增加。此外,她们报告说,围产期护理需求未得到满足。这项定性研究探讨了临床医生对为智力和发育障碍女性提供围产期护理的障碍的看法。

方法

我们对美国产科护理临床医生(n=17)进行了半结构化访谈和一次焦点小组讨论。我们使用内容分析方法对数据进行编码和分析,以找出更大的主题和关系。

结果

大多数参与者是白人、非西班牙裔和女性。参与者报告了在个人(例如,沟通挑战)、实践(例如,残疾状况的识别)和系统层面(例如,缺乏临床医生培训)为智力和发育障碍孕妇提供护理的障碍。

结论

需要对智力和发育障碍女性的围产期护理以及怀孕期间的服务和支持进行临床医生培训和循证指南。

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Ensuring the Reproductive Rights of Women with Intellectual Disability.保障智障妇女的生殖权利。
J Intellect Dev Disabil. 2020;45(4):365-376. doi: 10.3109/13668250.2020.1762383. Epub 2020 Jun 10.

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