Kagan Jonathan M, Rosas Scott R, Siskind Rona L, Campbell Russell D, Gondwe Daniel, Munroe David, Trochim William M K, Schouten Jeffrey T
Division of Clinical Research, National Institute of Allergy and Infectious Diseases, National Institutes of Health, USA.
Prog Community Health Partnersh. 2012 Fall;6(3):311-20. doi: 10.1353/cpr.2012.0034.
Community engagement has been a cornerstone of National Institute of Allergy and Infectious Diseases (NIAID)'s HIV/AIDS clinical trials programs since 1990. Stakeholders now consider this critical to success, hence the impetus to develop evaluation approaches.
The purpose was to assess the extent to which community advisory boards (CABs) at HIV/AIDS trials sites are being integrated into research activities.
CABs and research staff (RS) at NIAID research sites were surveyed for how each viewed (a) the frequency of activities indicative of community involvement, (b) the means for identifying, prioritizing, and supporting CAB needs, and (c) mission and operational challenges.
Overall, CABs and RS share similar views about the frequency of community involvement activities. Cluster analysis reveals three groups of sites based on activity frequency ratings, including a group notable for CAB-RS discordance.
Assessing differences between community and researcher perceptions about the frequency of and challenges posed by specific engagement activities may prove useful in developing evaluation tools for assessing community engagement in collaborative research settings.
自1990年以来，社区参与一直是美国国立过敏与传染病研究所（NIAID）艾滋病临床试验项目的基石。利益相关者现在认为这对成功至关重要，因此推动了评估方法的发展。
旨在评估艾滋病试验点的社区咨询委员会（CAB）融入研究活动的程度。
对NIAID研究点的社区咨询委员会和研究人员进行调查，了解他们如何看待（a）表明社区参与的活动频率，（b）确定、优先考虑和支持社区咨询委员会需求的方式，以及（c）使命和运营挑战。
总体而言，社区咨询委员会和研究人员对社区参与活动的频率看法相似。聚类分析根据活动频率评级将研究点分为三组，其中一组以社区咨询委员会与研究人员意见不一致为显著特征。
评估社区与研究人员对特定参与活动的频率和所带来挑战的看法差异，可能有助于开发评估工具，以评估社区在合作研究环境中的参与情况。
