Le Dref Gaëlle, Grollemund Bruno, Danion-Grilliat Anne, Weber Jean-Christophe
Institut de Recherches Interdisciplinaires sur les Sciences et la Technologie EA 3424, Université de Strasbourg, Strasbourg, France.
Med Health Care Philos. 2013 Aug;16(3):365-75. doi: 10.1007/s11019-012-9437-1.
The improvement of ultrasound scan techniques is enabling ever earlier prenatal diagnosis of developmental anomalies. In France, apart from cases where the mother's life is endangered, the detection of "particularly serious" conditions, and conditions that are "incurable at the time of diagnosis" are the only instances in which a therapeutic abortion can be performed, this applying up to the 9th month of pregnancy. Thus numerous conditions, despite the fact that they cause distress or pain or are socially disabling, do not qualify for therapeutic abortion, despite sometimes pressing demands from parents aware of the difficulties in store for their child and themselves, in a society that is not very favourable towards the integration and self-fulfilment of people with a disability. Cleft lip and palate (CLP), although it can be completely treated, is one of the conditions that considerably complicates the lives of child and parents. Nevertheless, the recent scope for making very early diagnosis of CLP, before the deadline for legal voluntary abortion, has not led to any wave of abortions. CLP in France has the benefit of a exceptional care plan, targeting both the health and the integration of the individuals affected. This article sets out, via the emblematic instance of CLP, to show how present fears of an emerging "domestic" or liberal eugenic trend could become redundant if disability is addressed politically and medically, so that individuals with a disability have the same social rights as any other citizen.
超声扫描技术的进步使得发育异常的产前诊断越来越早。在法国,除了母亲生命受到威胁的情况外,只有检测到“特别严重”的病症以及“诊断时无法治愈”的病症,才是可以进行治疗性堕胎的唯一情形,这种情况适用于怀孕9个月以内。因此,许多病症尽管会造成痛苦或疼痛,或者在社会层面上导致残疾,但并不符合治疗性堕胎的条件,尽管有时患儿父母深知孩子和自身将面临重重困难,且社会对残疾人融入社会和实现自我价值并不十分有利,他们也提出了迫切要求。唇腭裂(CLP)虽然可以得到彻底治疗,但却是一种会给患儿及其父母的生活带来极大困扰的病症。然而,近期在法定自愿堕胎期限之前就能对唇腭裂进行极早期诊断的可能性,并未引发堕胎潮。在法国,唇腭裂患者受益于一项针对患者健康和融入社会的特殊护理计划。本文通过唇腭裂这个典型例子,旨在表明,如果从政治和医学层面解决残疾问题,使残疾人享有与其他公民相同的社会权利,那么当前对新兴“家庭式”或自由优生趋势的担忧可能就会变得多余。