Puntis J W, Ritson D G, Holden C E, Buick R G
Institute of Child Health, University of Birmingham.
Arch Dis Child. 1990 Jan;65(1):84-8. doi: 10.1136/adc.65.1.84.
Of 230 families belonging to a support group for parents of children born with oesophageal atresia, 124 returned a detailed questionnaire on feeding history and growth. Being slow to feed, refusing meals, coughing or choking during eating, and vomiting at meal times were significantly more common than in 50 healthy control children. Anthropometric analysis indicated that almost one third of patients were growth retarded, although those with a primary oesophageal anastomosis were less likely to be stunted or wasted compared with children who had an oesophageal substitution preceded by an oesophagostomy. Feeding problems tended to resolve spontaneously but slowly, with half of all children still reporting some difficulties at 7 years of age. Parents were considerably worried by feed related symptoms and families benefited from mutual support. There is a need for additional help and advice to be provided both by hospital staff interested in nutrition and feeding disorders and those professionals involved with primary care.
在一个针对食管闭锁患儿家长的支持小组的230个家庭中,124个家庭返回了一份关于喂养史和生长情况的详细问卷。与50名健康对照儿童相比,喂养缓慢、拒绝进食、进食时咳嗽或窒息以及进餐时呕吐的情况明显更为常见。人体测量分析表明,近三分之一的患者生长发育迟缓,尽管与先行食管造口术再行食管替代术的儿童相比,进行一期食管吻合术的患者发育迟缓或消瘦的可能性较小。喂养问题往往会自行缓慢解决,但到7岁时仍有一半的儿童报告存在一些困难。家长们对与喂养相关的症状深感担忧,家庭从相互支持中受益。需要对营养和喂养障碍感兴趣的医院工作人员以及参与初级保健的专业人员提供更多的帮助和建议。