Oskay Deran, Oksüz Ciğdem, Akel Semin, Firat Tüzün, Leblebicioğlu Gürsel
Department of Physiotherapy and Rehabilitation, Faculty of Health Science, Gazi University, Ankara, Turkey.
Pediatr Int. 2012 Feb;54(1):117-22. doi: 10.1111/j.1442-200X.2011.03455.x. Epub 2011 Oct 30.
The aim of this study was to explore impairment in quality of life (QOL) of the mothers who were primarily responsible for taking care of children with obstetrical brachial plexus palsy (OBPP) and to state its association with the age, sex and functional status of the child with OBPP.
Ninety-three mothers of children with OBPP and 88 mothers of children without any health problems were included in the study. Children's demographic characteristics were recorded and the functional status of the upper extremity was determined with the active movement scale. The QOL of the mothers was assessed with the Turkish version of the Nottingham Health Profile (NHP).
There were significant differences between mothers of children with OBPP and the control group in total, physical activity, energy expenditure, and pain score of the NHP. A decrease in energy expenditure and physical activity levels were found to be related to children's active movement scale results in elbow flexion and extension, and forearm supination. A statistically meaningful difference was found between mothers of children aged 0-2 and mothers of children aged 2-7 years in emotional reaction, social isolation and total score of NHP.
The results of this study revealed that mothers of children with OBPP have poor QOL compared with mothers of healthy children. The limitation in elbow joint movements was found to be important for the mothers. The strongest impact of the illness is on the emotional reactions and social isolation of the mothers. Professionals involved in the care of children with OBPP should also help parents to cope with the burden of caregiving.
本研究旨在探讨主要负责照顾患有产瘫性臂丛神经麻痹（OBPP）儿童的母亲的生活质量（QOL）受损情况，并阐述其与患有OBPP儿童的年龄、性别和功能状态之间的关联。
本研究纳入了93名患有OBPP儿童的母亲和88名孩子无任何健康问题的母亲。记录儿童的人口统计学特征，并用主动运动量表确定上肢的功能状态。母亲的生活质量通过诺丁汉健康量表（NHP）的土耳其语版本进行评估。
患有OBPP儿童的母亲与对照组在NHP的总分、身体活动、能量消耗和疼痛评分方面存在显著差异。发现能量消耗和身体活动水平的降低与儿童在肘关节屈伸和前臂旋后的主动运动量表结果有关。在情感反应、社会孤立和NHP总分方面，0至2岁儿童的母亲与2至7岁儿童的母亲之间存在统计学上有意义的差异。
本研究结果显示，与健康儿童的母亲相比，患有OBPP儿童的母亲生活质量较差。发现肘关节活动受限对母亲来说很重要。该疾病对母亲的情感反应和社会孤立影响最大。参与照顾患有OBPP儿童的专业人员也应帮助家长应对照顾负担。
