Correia Patrícia Santana, Vitiello Pedro, Cardoso Maria Helena Cabral de Almeida, Horovitz Dafne Dain Gandelman
Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira-FIOCRUZ, Av Rui Barbosa, 716, Rio de Janeiro, RJ, Brazil, 22250020,
J Community Genet. 2013 Jan;4(1):115-23. doi: 10.1007/s12687-012-0125-x. Epub 2012 Nov 1.
The purpose of this study was to investigate awareness, beliefs, and opinions on genetics in a group of Brazilian college students from several courses. The study used the focus group technique with the participation of 19 students, divided into four groups. Also, it used the isotopic reading technique to analyze the material. The results were divided in four themes: the basic knowledge of genetics, the "new genetics," including molecular biology and testing, genetic manipulation, and genetics and the media. The participants showed reasonable knowledge on the subject, obtained from various sources, including the printed press, the internet, documentaries, and fictional TV shows. Ethical issues were discussed comprehensively and the groups showed awareness on the hazards brought by genetic reductionism and the need to have some type of regulation regarding genetic manipulation and testing. It is necessary to broaden the debate about the progress in genetics because some of them will affect a significant number of people. This debate should include the lay public, which has been actively participating in decisions involving research and the use of new technologies.
本研究的目的是调查一群来自巴西多门课程的大学生对遗传学的认识、信念和看法。该研究采用焦点小组技术,有19名学生参与,分为四组。此外,它还使用了同位素阅读技术来分析材料。结果分为四个主题:遗传学的基础知识、“新遗传学”,包括分子生物学和检测、基因操作以及遗传学与媒体。参与者对该主题表现出了合理的知识,这些知识来自各种来源,包括印刷媒体、互联网、纪录片和虚构的电视节目。伦理问题得到了全面讨论,各小组对基因简化论带来的危害以及对基因操作和检测进行某种形式监管的必要性有了认识。有必要扩大关于遗传学进展的辩论,因为其中一些进展将影响大量人群。这场辩论应包括普通公众,他们一直在积极参与涉及研究和新技术使用的决策。