Department of Biomedical Engineering, Cleveland Clinic Lerner Research Institute, OH, USA.
J Neurosci Nurs. 2012 Dec;44(6):337-50. doi: 10.1097/JNN.0b013e3182682f9b.
Few studies have explored how people living with multiple sclerosis (MS) cope with impairments and disability to participate in nutritional behaviors, such as meal preparation and grocery shopping. Thus, we conducted a qualitative study among eight individuals with MS who experienced mobility impairments. The eight individuals participated in semistructured, face-to-face interviews that focused on obtaining narratives about day-to-day dietary habits, preparing food, grocery shopping, and going to restaurants. Interviews were analyzed using an inductive category and theme development approach. Overall themes were (a) "it's a lot of work," (b) "it's not just up to me," (c) sifting through nutritional information, and (d) "why I eat what I eat." Participants frequently reported fatigue and mobility impairments as barriers to engagement in nutritional behaviors and often described family members as the "gatekeepers" for food selection and preparation (i.e., providing tangible support). Future research should explore the effectiveness of nutritional interventions that target family dynamics and create a supportive social environment to promote healthy eating habits and nutritional autonomy.
很少有研究探讨多发性硬化症（MS）患者如何应对身体损伤和残疾，以参与营养行为，如准备膳食和购买杂货。因此，我们对 8 名患有 MS 且行动不便的患者进行了一项定性研究。这 8 名患者参与了半结构化的面对面访谈，重点是获取有关日常饮食习惯、准备食物、购买杂货和去餐馆的叙述。访谈采用归纳类别和主题发展方法进行分析。总体主题为：(a)“这很麻烦”；(b)“这不仅仅是我的事”；(c)筛选营养信息；以及(d)“我为什么吃我吃的东西”。参与者经常报告疲劳和行动不便会对参与营养行为造成障碍，他们经常将家庭成员描述为食物选择和准备的“把关人”（即提供有形支持）。未来的研究应探讨针对家庭动态的营养干预措施的有效性，并创造一个支持性的社会环境，以促进健康的饮食习惯和营养自主权。
