• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

多发性硬化症患者改变饮食所需资源:为未来饮食干预提供信息的定性研究

Desired Resources for Changing Diet Among Persons With Multiple Sclerosis: Qualitative Inquiry Informing Future Dietary Interventions.

作者信息

Silveira Stephanie L, Richardson Emma V, Motl Robert W

机构信息

Department of Physical Therapy, University of Alabama at Birmingham, USA (SLS, EVR, RWM).

Department of Kinesiology, Health Promotion, and Recreation, University of North Texas, Denton, USA (SLS).

出版信息

Int J MS Care. 2022 Jul-Aug;24(4):175-183. doi: 10.7224/1537-2073.2021-052. Epub 2021 Oct 28.

DOI:10.7224/1537-2073.2021-052
PMID:35875458
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9296057/
Abstract

BACKGROUND

There are approximately 1 million adults in the United States with multiple sclerosis (MS). Persons with MS are interested in diet as a second-line therapy for improving MS symptoms and disease progression. Examination of desired resources regarding diet among persons with MS is necessary for supporting behavior change.

METHODS

Twenty-five adults with MS completed 1-on-1, online semistructured interviews. An inductive, 6-phase, semantic thematic analysis was applied to identify themes associated with participant preferences for dietary behavior change.

RESULTS

The research team crafted 4 key themes from the data that encompassed participants' desired resources for dietary behavior change. Theme 1, MS-specific evidence, involved the need for clear information about the impact of diet regimens or specific foods on MS. Theme 2, dietary guidelines, was related to guidelines provided by a reliable source such as a registered dietitian. Theme 3, behavioral supports, underscored the need for support for behavior change, including accountability, self-monitoring, motivation, habituation, and incremental changes. Theme 4, diet resources, highlighted tangible resources for supporting dietary change, including recipes, food lists, meal services, or games.

CONCLUSIONS

This study provides a foundation for guiding dietary interventions for persons with MS that incorporates their needs and preferences and could improve their overall health. Such dietary change can be facilitated by theory-based behavioral interventions that incorporate behavior change techniques such as self-monitoring and goal setting for supporting behavior change.

摘要

背景

美国约有100万成年人患有多发性硬化症(MS)。MS患者对饮食作为改善MS症状和疾病进展的二线疗法感兴趣。了解MS患者在饮食方面所需的资源对于支持行为改变很有必要。

方法

25名成年MS患者完成了一对一的在线半结构化访谈。采用归纳式的六阶段语义主题分析来确定与参与者饮食行为改变偏好相关的主题。

结果

研究团队从数据中提炼出4个关键主题,涵盖了参与者饮食行为改变所需的资源。主题1,MS特异性证据,涉及需要明确了解饮食方案或特定食物对MS的影响的信息。主题2,饮食指南,与可靠来源(如注册营养师)提供的指南有关。主题3,行为支持,强调了行为改变所需的支持,包括问责制、自我监测、动机、习惯养成和渐进式改变。主题4,饮食资源,突出了支持饮食改变的具体资源,包括食谱、食物清单、餐饮服务或游戏。

结论

本研究为指导MS患者的饮食干预提供了基础,该干预纳入了他们的需求和偏好,可能会改善他们的整体健康。基于理论的行为干预可以促进这种饮食改变,这些干预纳入了自我监测和目标设定等行为改变技巧以支持行为改变。

相似文献

1
Desired Resources for Changing Diet Among Persons With Multiple Sclerosis: Qualitative Inquiry Informing Future Dietary Interventions.多发性硬化症患者改变饮食所需资源:为未来饮食干预提供信息的定性研究
Int J MS Care. 2022 Jul-Aug;24(4):175-183. doi: 10.7224/1537-2073.2021-052. Epub 2021 Oct 28.
2
Facilitators of and Barriers to Adherence to Dietary Interventions Perceived by Women With Multiple Sclerosis and Their Support Persons.多发性硬化症女性及其支持人员所感知到的饮食干预依从性的促进因素和障碍
Int J MS Care. 2022 Sep-Oct;24(5):235-241. doi: 10.7224/1537-2073.2021-051. Epub 2022 May 26.
3
Navigating dietary advice for multiple sclerosis.多发性硬化症的饮食建议。
Health Expect. 2021 Jun;24(3):853-862. doi: 10.1111/hex.13226. Epub 2021 Apr 10.
4
Informing the development of a mobile application for the physical activity guidelines in multiple sclerosis: a qualitative, pluralistic approach.为多发性硬化症的身体活动指南开发一款移动应用程序:一种定性的、多元化的方法。
Disabil Rehabil Assist Technol. 2024 May;19(4):1161-1169. doi: 10.1080/17483107.2022.2153937. Epub 2022 Dec 9.
5
Informing the design of exercise programs for persons with multiple sclerosis who use wheelchairs: a qualitative inquiry of perceived components.为使用轮椅的多发性硬化症患者设计运动方案:一项感知组件的定性研究。
Disabil Rehabil. 2021 Jun;43(13):1838-1848. doi: 10.1080/09638288.2019.1678073. Epub 2019 Oct 16.
6
Dietary interventions for multiple sclerosis-related outcomes.针对多发性硬化症相关结局的饮食干预措施。
Cochrane Database Syst Rev. 2020 May 19;5(5):CD004192. doi: 10.1002/14651858.CD004192.pub4.
7
Capitalising on the opinions of persons with multiple sclerosis to inform the main trial - participant opinions from participation in a feasibility study, a qualitative extension study.利用多发性硬化症患者的意见来为主要试验提供信息——从参与可行性研究中获得的参与者意见,这是一项定性扩展研究。
Disabil Rehabil. 2019 Dec;41(25):3071-3078. doi: 10.1080/09638288.2018.1490823. Epub 2018 Jul 24.
8
Managing communication changes in persons with multiple sclerosis: Findings from qualitative focus groups.管理多发性硬化症患者的沟通变化:定性焦点小组的发现。
Int J Lang Commun Disord. 2022 May;57(3):680-694. doi: 10.1111/1460-6984.12717. Epub 2022 Mar 26.
9
10
Diet and multiple sclerosis - development and mixed methods feasibility testing of a comprehensive nutritional information resource (NUTRIMS).饮食与多发性硬化症——综合营养信息资源(NUTRIMS)的开发与混合方法可行性测试
Disabil Rehabil. 2025 Apr;47(8):1988-1999. doi: 10.1080/09638288.2024.2388259. Epub 2024 Sep 1.

引用本文的文献

1
Effects of a Multimodal Lifestyle Intervention on Cardiometabolic Markers in People with Progressive Multiple Sclerosis: A Secondary Analysis of a Pilot Study.多模式生活方式干预对进行性多发性硬化症患者心脏代谢标志物的影响:一项试点研究的二次分析
Nutrients. 2025 Mar 27;17(7):1163. doi: 10.3390/nu17071163.
2
Exploring the Perspectives of Healthcare Consumers Towards the Integration of Nutrition in Routine Multiple Sclerosis Care: A Qualitative Study.探索医疗保健消费者对将营养纳入常规多发性硬化症护理的看法:一项定性研究。
J Hum Nutr Diet. 2025 Apr;38(2):e70042. doi: 10.1111/jhn.70042.
3
Perceptions and Utilization of Registered Dietitian Nutritionists in Multiple Sclerosis Care: A Pilot Survey of Multidisciplinary Providers.注册营养师在多发性硬化症护理中的认知与应用:多学科医疗服务提供者的初步调查
Nutrients. 2025 Jan 22;17(3):385. doi: 10.3390/nu17030385.
4
Nutrition Knowledge and Food Literacy Among Persons with Multiple Sclerosis-Development and Validation of Patient-Reported Outcome Measures.多发性硬化症患者的营养知识与食品素养——患者报告结局指标的开发与验证
Nutrients. 2024 Nov 26;16(23):4043. doi: 10.3390/nu16234043.
5
Feasibility and assessment of self-reported dietary recalls among newly diagnosed multiple sclerosis: a quasi-experimental pilot study.新诊断多发性硬化症患者自我报告饮食回忆的可行性及评估:一项准实验性试点研究。
Front Nutr. 2024 Oct 11;11:1369700. doi: 10.3389/fnut.2024.1369700. eCollection 2024.
6
Evaluating Experiences in a Digital Nutrition Education Program for People With Multiple Sclerosis: A Qualitative Study.评估多发性硬化症患者数字营养教育计划中的体验:一项定性研究。
Health Expect. 2024 Oct;27(5):e70012. doi: 10.1111/hex.70012.
7
Dietary Modification Combined with Nutrition Education and Counseling for Metabolic Comorbidities in Multiple Sclerosis: Implications for Clinical Practice and Research.饮食调整联合营养教育及咨询对多发性硬化代谢共病的影响:对临床实践和研究的启示。
Curr Nutr Rep. 2024 Jun;13(2):106-112. doi: 10.1007/s13668-024-00538-8. Epub 2024 Apr 27.
8
Diet-induced changes in functional disability are mediated by fatigue in relapsing-remitting multiple sclerosis: A secondary analysis of the WAVES randomized parallel-arm trial.饮食引起的功能残疾变化由复发缓解型多发性硬化症中的疲劳介导:WAVES随机平行臂试验的二次分析。
Mult Scler J Exp Transl Clin. 2023 Oct 30;9(4):20552173231209147. doi: 10.1177/20552173231209147. eCollection 2023 Oct-Dec.
9
Overview of diet and autoimmune demyelinating optic neuritis: a narrative review.饮食与自身免疫性脱髓鞘性视神经炎概述:一项叙述性综述
Immunometabolism (Cobham). 2023 Apr 27;5(2):e00022. doi: 10.1097/IN9.0000000000000022. eCollection 2023 Apr.
10
Opinion: The role of the registered dietitian nutritionist in multiple sclerosis care in the United States.观点:注册营养师在美国多发性硬化症护理中的作用。
Front Neurol. 2023 Feb 9;14:1068358. doi: 10.3389/fneur.2023.1068358. eCollection 2023.

本文引用的文献

1
Navigating dietary advice for multiple sclerosis.多发性硬化症的饮食建议。
Health Expect. 2021 Jun;24(3):853-862. doi: 10.1111/hex.13226. Epub 2021 Apr 10.
2
Rising prevalence of multiple sclerosis worldwide: Insights from the Atlas of MS, third edition.全球多发性硬化症患病率上升:第三版多发性硬化症图谱的见解。
Mult Scler. 2020 Dec;26(14):1816-1821. doi: 10.1177/1352458520970841. Epub 2020 Nov 11.
3
Health Behaviors, Wellness, and Multiple Sclerosis Amid COVID-19.新冠疫情期间的健康行为、健康状况与多发性硬化症
Arch Phys Med Rehabil. 2020 Oct;101(10):1839-1841. doi: 10.1016/j.apmr.2020.06.001. Epub 2020 Aug 29.
4
The unresolved role of the neurologist in providing dietary advice to people with multiple sclerosis.神经科医生在为多发性硬化症患者提供饮食建议方面尚未明确的作用。
Mult Scler Relat Disord. 2020 Sep;44:102304. doi: 10.1016/j.msard.2020.102304. Epub 2020 Jun 13.
5
Global, regional, and national burden of neurological disorders, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016.全球、区域和国家神经障碍负担,1990-2016 年:2016 年全球疾病负担研究的系统分析。
Lancet Neurol. 2019 May;18(5):459-480. doi: 10.1016/S1474-4422(18)30499-X. Epub 2019 Mar 14.
6
Review of Two Popular Eating Plans within the Multiple Sclerosis Community: Low Saturated Fat and Modified Paleolithic.多发性硬化症社群中两种流行饮食计划的回顾:低饱和脂肪饮食和改良旧石器饮食。
Nutrients. 2019 Feb 7;11(2):352. doi: 10.3390/nu11020352.
7
The Role of Diet in Multiple Sclerosis: Mechanistic Connections and Current Evidence.饮食在多发性硬化中的作用:机制关联和现有证据。
Curr Nutr Rep. 2018 Sep;7(3):150-160. doi: 10.1007/s13668-018-0236-z.
8
Dietary responses to a multiple sclerosis diagnosis: a qualitative study.多发性硬化症诊断后的饮食反应:一项定性研究。
Eur J Clin Nutr. 2019 Apr;73(4):601-608. doi: 10.1038/s41430-018-0252-5. Epub 2018 Jun 25.
9
Wellness and the Role of Comorbidities in Multiple Sclerosis.健康与多发性硬化症共病的作用。
Neurotherapeutics. 2017 Oct;14(4):999-1017. doi: 10.1007/s13311-017-0563-6.
10
The role of diet in multiple sclerosis: A review.饮食在多发性硬化中的作用:综述。
Nutr Neurosci. 2018 Jul;21(6):377-390. doi: 10.1080/1028415X.2017.1303016. Epub 2017 Mar 24.