Suppr超能文献

终末期肾病患者临终关怀与姑息治疗的不同方法

Contrasting approaches to end of life and palliative care in end stage kidney disease.

作者信息

Koshy A N, Mace R, Youl L, Challenor S, Bull R, Fassett R G

机构信息

Department of Medicine, Alfred Hospital, Melbourne, Victoria, Australia.

出版信息

Indian J Nephrol. 2012 Jul;22(4):307-9. doi: 10.4103/0971-4065.101263.

Abstract

With increased numbers of the elderly, including nursing home patients, being accepted for end-stage kidney disease (ESKD) management, there is heightened interest and focus on end of life decisions, advanced care planning and directives, withdrawal from dialysis and palliative care in this setting. Despite this, care at the individual patient level can vary greatly. Here, we present two contrasting cases to highlight the importance of early and ongoing involvement of palliative care in patients with ESKD. In the first case, a high quality of life was preserved before the patient died with dignity, with early interdisciplinary palliative care involvement. In the second case there was a long protracted period of poor quality of life prior to death. This was associated with resistance to the involvement of palliative care, mainly from the family. Addressing end of life care issues early in the chronic kidney disease (CKD) trajectory and ensuring patients, their families and health care providers are well informed, may contribute to a better outcome for the patient and their family.

摘要

随着越来越多的老年人,包括养老院患者,被纳入终末期肾病(ESKD)管理,人们对临终决策、高级护理计划和指示、停止透析以及这种情况下的姑息治疗的兴趣和关注度日益提高。尽管如此,个体患者层面的护理差异可能很大。在此,我们呈现两个截然不同的案例,以突出姑息治疗在ESKD患者中早期及持续参与的重要性。在第一个案例中,由于姑息治疗团队早期的跨学科参与,患者在有尊严地离世前保持了较高的生活质量。在第二个案例中,患者在死亡前经历了很长一段时间的低质量生活。这与主要来自家庭对姑息治疗参与的抵触有关。在慢性肾病(CKD)病程早期解决临终护理问题,并确保患者、其家人和医疗服务提供者充分了解情况,可能有助于患者及其家人获得更好的结果。

相似文献

1
Contrasting approaches to end of life and palliative care in end stage kidney disease.
Indian J Nephrol. 2012 Jul;22(4):307-9. doi: 10.4103/0971-4065.101263.
2
Palliative care in end-stage kidney disease.
Nephrology (Carlton). 2011 Jan;16(1):4-12. doi: 10.1111/j.1440-1797.2010.01409.x.
3
Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD.
Am J Kidney Dis. 2014 Jun;63(6):913-27. doi: 10.1053/j.ajkd.2013.11.017. Epub 2014 Jan 7.
5
Unmet Palliative Care Needs Among Patients With End-Stage Kidney Disease: A National Registry Study About the Last Week of Life.
J Pain Symptom Manage. 2018 Feb;55(2):236-244. doi: 10.1016/j.jpainsymman.2017.09.015. Epub 2017 Sep 21.
6
The use of palliative care services amongst end-stage kidney disease patients in an Irish tertiary referral centre.
Clin Kidney J. 2013 Dec;6(6):604-8. doi: 10.1093/ckj/sft117. Epub 2013 Oct 10.
8
Palliative Care for Patients with Kidney Disease.
J Clin Med. 2022 Jul 5;11(13):3923. doi: 10.3390/jcm11133923.
9
Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.
JBI Database System Rev Implement Rep. 2015 Jan;13(1):99-111. doi: 10.11124/jbisrir-2015-1809.

引用本文的文献

1
End-of-Life Care for Patients Afflicted with Incurable Malignancy and End-Stage Renal Disease.
Indian J Palliat Care. 2014 May;20(2):99-100. doi: 10.4103/0973-1075.132619.

本文引用的文献

1
Palliative care in end-stage kidney disease.
Nephrology (Carlton). 2011 Jan;16(1):4-12. doi: 10.1111/j.1440-1797.2010.01409.x.
2
Dialysis in frail elders--a role for palliative care.
N Engl J Med. 2009 Oct 15;361(16):1597-8. doi: 10.1056/NEJMe0907698.
3
Renal supportive care: view from across the pond: the United States perspective.
J Palliat Med. 2007 Dec;10(6):1241-4. doi: 10.1089/jpm.2006.0252.
4
Palliative care in end-stage renal disease: illness trajectories, communication, and hospice use.
Adv Chronic Kidney Dis. 2007 Oct;14(4):402-8. doi: 10.1053/j.ackd.2007.07.002.
5
Dialysis discontinuation: quo vadis?
Adv Chronic Kidney Dis. 2007 Oct;14(4):379-401. doi: 10.1053/j.ackd.2007.07.008.
6
End-stage renal disease in the United States: an update from the United States Renal Data System.
J Am Soc Nephrol. 2007 Oct;18(10):2644-8. doi: 10.1681/ASN.2007020220. Epub 2007 Jul 26.
7
Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5.
Nephrol Dial Transplant. 2007 Jul;22(7):1955-62. doi: 10.1093/ndt/gfm153. Epub 2007 Apr 4.
8
Renal palliative care.
J Palliat Med. 2006 Aug;9(4):977-92. doi: 10.1089/jpm.2006.9.977.
9
Physicians' decisions to withhold and withdraw life-sustaining treatment.
Arch Intern Med. 2006 Mar 13;166(5):560-4. doi: 10.1001/archinte.166.5.560.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验