Health Services Research, School of Health and Related Research, University of Sheffield, Sheffield, UK.
Health Qual Life Outcomes. 2012 Nov 22;10:138. doi: 10.1186/1477-7525-10-138.
To identify the domains of quality of life important to people with mental health problems.
A systematic review of qualitative research undertaken with people with mental health problems using a framework synthesis.
We identified six domains: well-being and ill-being; control, autonomy and choice; self-perception; belonging; activity; and hope and hopelessness. Firstly, symptoms or 'ill-being' were an intrinsic aspect of quality of life for people with severe mental health problems. Additionally, a good quality of life was characterised by the feeling of being in control (particularly of distressing symptoms), autonomy and choice; a positive self-image; a sense of belonging; engagement in meaningful and enjoyable activities; and feelings of hope and optimism. Conversely, a poor quality life, often experienced by those with severe mental health difficulties, was characterized by feelings of distress; lack of control, choice and autonomy; low self-esteem and confidence; a sense of not being part of society; diminished activity; and a sense of hopelessness and demoralization.
Generic measures fail to address the complexity of quality of life measurement and the broad range of domains important to people with mental health problems.
确定对心理健康问题患者重要的生活质量领域。
使用框架综合法对有心理健康问题的患者进行的定性研究的系统综述。
我们确定了六个领域：幸福和痛苦；控制、自主和选择；自我认知；归属感；活动；希望和绝望。首先，症状或“痛苦”是严重心理健康问题患者生活质量的内在方面。此外，高质量的生活的特点是有控制感（特别是对痛苦症状）、自主和选择；积极的自我形象；归属感；参与有意义和愉快的活动；以及充满希望和乐观的感觉。相反，严重心理健康障碍患者往往会经历低质量的生活，其特点是痛苦感；缺乏控制、选择和自主权；自尊心和自信心低；感觉自己不属于社会；活动减少；以及绝望和士气低落。
通用措施无法解决生活质量衡量的复杂性以及对心理健康问题患者重要的广泛领域。
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