School of Social Work, University of South Florida, Tampa, FL 33612-3807, USA.
Support Care Cancer. 2013 May;21(5):1233-9. doi: 10.1007/s00520-012-1652-z. Epub 2012 Nov 29.
Limited knowledge exists pertaining to advance care planning (ACP) among Colombian, Mexican, and Puerto Rican women with a cancer diagnosis living in Central Florida, in the USA. The purpose of the study is to identify factors that facilitated the completion of ACP and decisions making patterns among the three groups of Latinas.
The research method used was an exploratory qualitative in-depth open-ended semi-structured interview with a grounded theoretical approach and thematic analysis. The interviews were conducted in Spanish with a purposeful sample of 45 Latinas (15 in each group) diagnosed with cancer.
A total of ten women (22 %) in the study documented at least one form of ACP. Thirty-five women identified obstacles to accessing information regarding ACP, relating this to insurance and financial factors. Among the Colombian women, one completed a living will, health care surrogate, and power of attorney (all forms of ACP), and three just a living will. Two Puerto Rican women completed all, two a living will, and one both a living will and an enduring power of attorney. Only one Mexican woman completed a living will.
This study identifies a knowledge gap regarding ACP among Latina women with cancer diagnosis living in Central Florida, in the USA. Differences between the three groups exist as a result of migration/immigration history, family support, education, English language proficiency, income, knowledge gaps, and information ascertained by medical and health professionals. These differences contribute to their readiness, receptiveness, and willingness to engage in documenting a living will, a health care surrogate, and an enduring power of attorney for health decisions.
在美国佛罗里达州中部,患有癌症的哥伦比亚、墨西哥和波多黎各女性对预先医疗指示(ACP)的了解有限。本研究旨在确定促成这三个拉丁裔群体完成 ACP 和决策模式的因素。
研究方法采用探索性定性深入开放式半结构式访谈,采用扎根理论方法和主题分析。访谈以西班牙语进行,目的是对 45 名拉丁裔女性(每组 15 名)进行癌症诊断。
研究中共有 10 名女性(22%)记录了至少一种形式的 ACP。35 名女性确定了获取 ACP 信息的障碍,这与保险和财务因素有关。在哥伦比亚女性中,一人完成了生前预嘱、医疗保健代理人和授权书(所有形式的 ACP),三人仅完成了生前预嘱。两名波多黎各女性完成了所有的内容,两名女性仅完成了生前预嘱,一名女性完成了生前预嘱和持久授权书。只有一名墨西哥女性完成了生前预嘱。
本研究确定了居住在美国佛罗里达州中部的拉丁裔癌症女性对 ACP 的知识差距。由于移民/移民历史、家庭支持、教育、英语水平、收入、知识差距以及医疗和卫生专业人员获得的信息,这三个群体之间存在差异。这些差异影响了她们准备、接受和愿意记录生前预嘱、医疗保健代理人和持久的医疗决策授权书的程度。