Krstić Tatjana, Oros Marina
Institute for Child and Youth Health Care of Vojvodina, Novi Sad.
Med Pregl. 2012 Sep-Oct;65(9-10):373-7.
Raising a child with cerebral palsy is stressful for the parent because it requires an intensive physical engagement as well as coping with emotional reactions to the child's condition. Parents have different modes of adapting to stress and demands caused by the disorder. The Resiliency Model of Family Stress, Adjustment and Adaptation postulates that the use of certain coping strategies facilitates successful family adaptation to the child's condition.
Our study included 60 mothers of two- to seven-year-old children with diagnosed cerebral palsy. The modified Family Crisis-oriented Personal Evaluation Scales, with its five sub-scales, was applied to assess the strategies used by families to cope with stress.
The most frequently used strategy is reframing, whereas other strategies were used less frequently. The study has revealed some differences in adoption of certain strategies by mothers from urban and rural areas as well as of those strategies which depend on the severity of the child's condition.
The fact that reframing is the most frequently used strategy is encouraging because it helps parents to make their grave situation more acceptable. Institutional support is also often used by mothers of children with severe form of disease because of their need for medical care.
Recognition of coping strategies of the parents is important and useful for the development of therapeutic interventions aimed at facilitating family adaptation in families with a child with developmental disabilities.
抚养患有脑瘫的孩子对父母来说压力很大，因为这需要大量的体力投入，同时还要应对对孩子病情的情绪反应。父母适应这种疾病所带来的压力和需求的方式各不相同。家庭压力、调整与适应的弹性模型假定，使用某些应对策略有助于家庭成功适应孩子的病情。
我们的研究纳入了60名患有脑瘫的2至7岁儿童的母亲。应用经过修改的以家庭危机为导向的个人评估量表及其五个子量表，来评估家庭应对压力所采用的策略。
最常使用的策略是重新构建认知，而其他策略的使用频率较低。该研究揭示了城乡地区母亲在采用某些策略方面以及这些策略在取决于孩子病情严重程度方面存在一些差异。
重新构建认知是最常使用的策略这一事实令人鼓舞，因为它有助于父母使严峻的处境更易于接受。患有严重疾病孩子的母亲也经常利用机构支持，因为她们需要医疗护理。
认识到父母的应对策略对于制定旨在促进有发育障碍孩子的家庭实现家庭适应的治疗干预措施具有重要意义且很有用。
