Purdue University, West Lafayette, IN, USA.
J Pediatr Nurs. 2013 Jul-Aug;28(4):383-92. doi: 10.1016/j.pedn.2012.11.005. Epub 2012 Dec 11.
Hypoplastic left heart syndrome is a life threatening congenital cardiac anomaly. After a child has been diagnosed with hypoplastic left heart syndrome, parents must make life or death decisions within days of birth. Healthcare providers must provide appropriate education so that parents are able to make informed, timely decisions. Information regarding the diagnosis, treatment options, and parental decision making process for initial decision making for hypoplastic left heart syndrome are provided to guide nurses who work with these families. The challenging decision making process that parents must go through after diagnosis of hypoplastic left heart syndrome will be described.
左心发育不全综合征是一种危及生命的先天性心脏畸形。在孩子被诊断出患有左心发育不全综合征后，父母必须在出生后的几天内做出生死抉择。医疗保健提供者必须提供适当的教育，使父母能够做出明智、及时的决策。提供有关左心发育不全综合征初始决策的诊断、治疗选择和父母决策过程的信息，以指导与这些家庭合作的护士。将描述父母在诊断出左心发育不全综合征后必须经历的具有挑战性的决策过程。
