Ted Rogers School of Health Services Management and School of Information Technology Management, Chronic Disease Management and Prevention (CDMAP) Research Centre, Ryerson University, Toronto, Ontario, Canada.
Inform Health Soc Care. 2013 Sep;38(3):196-210. doi: 10.3109/17538157.2012.735732. Epub 2013 Jan 16.
Electronic Patient Records have improved vastly the quality and efficiency of care delivered. However, the formation of single demographic database and the ease of electronic information sharing give rise to many concerns including issues of consent, by whom and how data are accessed and used. This paper examines the organizational and socio-technical issues related to privacy, confidentiality and security when employing electronic records within a maternity service hospital in England.
A preliminary questionnaire was administered (n = 52), in total, 24 responses were received. Sixteen responses were from personnel in the information technology department, 5 from health information department and 3 from midwifery managers. This was followed by a semi-structured interview with representatives from the clinical and technological side.
A number of issues related to information governance (IG) have been identified, especially breaches on sharing personal information without consent from the patients have been identified as one immediate challenge that needs to be fixed.
There is an immediate need for more robust, realistic, built-in accountability both locally and nationally on data sharing. A culture of ownership and strict adherence to IG principles is paramount. Focused training in the area of data, information and knowledge sharing will bring in a balance of legitimate usage against the individual's rights to confidentiality and privacy.
电子病历大大提高了医疗服务的质量和效率。然而，单一人口统计学数据库的形成和电子信息共享的便利性引发了许多关注，包括同意问题、由谁访问和使用数据以及如何访问和使用数据等问题。本文研究了在英格兰一家产科医院使用电子记录时与隐私、保密性和安全性相关的组织和社会技术问题。
初步问卷调查（n=52），共收到 24 份回复。16 份来自信息技术部门的人员，5 份来自健康信息部门，3 份来自助产士经理。随后对临床和技术方面的代表进行了半结构化访谈。
已经确定了一些与信息治理（IG）相关的问题，特别是未经患者同意就共享个人信息的违规行为，被认为是需要立即解决的一个挑战。
在本地和全国范围内，立即需要更强大、更现实、内置的问责制来规范数据共享。拥有所有权和严格遵守 IG 原则至关重要。在数据、信息和知识共享领域进行集中培训，将在合法使用与个人保密和隐私权利之间取得平衡。
