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儿童呼吸与过敏症状专家网络和电子门户:原理与设计。

The expert network and electronic portal for children with respiratory and allergic symptoms: rationale and design.

机构信息

Department of Pediatric Pulmonology and Allergology, Wilhelmina Children's Hospital/University Medical Center Utrecht, PO Box 85090, 3508, Utrecht, AB, The Netherlands.

出版信息

BMC Pediatr. 2013 Jan 16;13:9. doi: 10.1186/1471-2431-13-9.

Abstract

Data on baseline characteristics of children with asthma to predict individual treatment responses are lacking. We aimed to set up a data-collection system which can easily fill this gap in clinical practice.A web-based application was developed, named 'Portal for children with respiratory and allergic symptoms', hereafter called Electronic Portal (EP). It contains health- and disease-related questionnaires on respiratory- and allergic diseases. All patients, 1-18 years of age, with respiratory- and/or allergic complaints are invited to enter the EP before their first visit. By using the EP large amounts of data, gathered during routine patient care can be used for research purposes. This may help to further investigate the different treatment related asthma phenotypes and will be helpful to monitor risk factors for other atopic diseases and respiratory infections.

摘要

关于预测哮喘儿童个体治疗反应的基线特征数据尚缺乏。我们旨在建立一个数据收集系统,以便在临床实践中轻松填补这一空白。我们开发了一个基于网络的应用程序,命名为“儿童呼吸道和过敏症状门户”,简称电子门户(EP)。它包含有关呼吸道和过敏疾病的健康和疾病相关问卷。所有年龄在 1-18 岁之间,有呼吸道和/或过敏症状的患者,在首次就诊前都被邀请进入 EP。通过使用 EP,可将日常患者护理中收集的大量数据用于研究目的。这有助于进一步研究不同的治疗相关哮喘表型,并有助于监测其他特应性疾病和呼吸道感染的危险因素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6f4e/3582546/dfec4aa42abb/1471-2431-13-9-1.jpg

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