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HIV/HCV 合并感染患者的生存双重性:不适合或对治疗无反应者的患者观点。

Dualities of living with HIV/HCV co-infection: patients' perspectives from those who are ineligible for or nonresponsive to treatment.

出版信息

J Assoc Nurses AIDS Care. 2014 Jan-Feb;25(1):9-22. doi: 10.1016/j.jana.2012.10.005. Epub 2013 Jan 20.

DOI:10.1016/j.jana.2012.10.005
PMID:23340239
Abstract

In Europe, an estimated 33% of HIV-infected individuals are co-infected with the hepatitis C virus (HCV). The aim of this study was to develop an understanding of the experiences of patients ineligible for or not responding to treatment. Patients attending an HIV/HCV clinic were interviewed. A qualitative design using hermeneutic interpretive phenomenology was employed. Transcripts, field notes, and a reflexive journal were analyzed to extract themes and identify commonalities, differences, and hidden meanings. In line with the duality of co-infection, duality was observed in responses. Participants described defining negative moments in their lives that resulted in developing positive health care strategies. Another dichotomy was one of loneliness and of social relationships. Finally, participants described a revival phenomenon, moving from feelings of death to looking forward to unexpected futures. Those working with co-infected patients need to be aware of how duality impacts people who are ineligible for or nonresponsive to treatment.

摘要

在欧洲,约有 33%的艾滋病毒感染者同时感染了丙型肝炎病毒(HCV)。本研究旨在了解不符合治疗条件或对治疗无反应的患者的经历。我们对在艾滋病毒/丙型肝炎病毒诊所就诊的患者进行了采访。采用解释学现象学的定性设计。分析转录本、现场记录和反思性日记,以提取主题并确定共性、差异和隐含意义。与合并感染的双重性一致,我们观察到参与者的反应也存在双重性。他们描述了生活中定义消极时刻的经历,这些经历导致了积极的医疗保健策略的形成。另一个二分法是孤独和社会关系。最后,参与者描述了一种复苏现象,从死亡的感觉转变为对意想不到的未来充满期待。与合并感染患者一起工作的人需要意识到双重性如何影响那些不符合治疗条件或对治疗无反应的患者。

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