Parc Sanitari Sant Joan de Déu, Universitat de Barcelona, Sant Boi de Llobregat, Barcelona, Spain.
Int Psychogeriatr. 2013 May;25(5):691-706. doi: 10.1017/S1041610212002293. Epub 2013 Jan 25.
Over the last 20 years, a number of instruments developed for the assessment of health-related quality of life (HRQL) in dementia have been introduced. The aim of this review is to synthesize evidence from published reviews on HRQL measures in dementia and any new literature in order to identify dementia specific HRQL instruments, the domains they measure, and their operationalization.
An electronic search of PsycINFO and PubMed was conducted, from inception to December 2011 using a combination of key words that included quality of life and dementia.
Fifteen dementia-specific HRQL instruments were identified. Instruments varied depending on their country of development/validation, dementia severity, data collection method, operationalization of HRQL in dementia, psychometric properties, and the scoring. The most common domains assessed include mood, self-esteem, social interaction, and enjoyment of activities.
A number of HRQL instruments for dementia are available. The suitability of the scales for different contexts is discussed. Many studies do not specifically set out to measure dementia-specific HRQL but do include related items. Determining how best to operationalize the many HRQL domains will be helpful for mapping measures of HRQL in such studies maximizing the value of existing resources.
在过去的 20 年中，已经开发了许多用于评估痴呆症患者健康相关生活质量（HRQL）的工具。本综述的目的是综合已发表的关于痴呆症 HRQL 测量的综述和任何新文献中的证据，以确定特定于痴呆症的 HRQL 工具、它们测量的领域以及它们的操作化。
使用包括生活质量和痴呆症在内的关键词组合，对 PsycINFO 和 PubMed 进行了电子检索，检索时间从开始到 2011 年 12 月。
确定了 15 种特定于痴呆症的 HRQL 工具。这些工具因开发/验证的国家/地区、痴呆症严重程度、数据收集方法、痴呆症中 HRQL 的操作化、心理测量特性和评分而有所不同。评估中最常见的领域包括情绪、自尊、社会互动和活动享受。
有许多用于痴呆症的 HRQL 工具。讨论了这些量表在不同环境下的适用性。许多研究并非专门用于测量特定于痴呆症的 HRQL，但确实包含相关项目。确定如何最好地操作化 HRQL 的许多领域将有助于在这些研究中映射 HRQL 测量，从而最大限度地利用现有资源的价值。
