West Virginia University School of Nursing, Morgantown, WV 26506, USA.
J Nurs Scholarsh. 2013 Mar;45(1):15-24. doi: 10.1111/jnu.12000. Epub 2013 Jan 31.
The rapid continuous feed of new information from scientific discoveries related to the human genome makes translation and incorporation of information into the clinical setting difficult and creates ethical, legal, and social challenges for providers. This article overviews some of the legal and ethical foundations that guide our response to current complex issues in health care associated with the impact of scientific discoveries related to the human genome.
Overlapping ethical, legal, and social implications impact nurses and other healthcare professionals as they seek to identify and translate into practice important information related to new genomic scientific knowledge.
Ethical and legal foundations such as professional codes, human dignity, and human rights provide the framework for understanding highly complex genomic issues. Ethical, legal, and social concerns of the health provider in the translation of genomic knowledge into practice including minimizing harms, maximizing benefits, transparency, confidentiality, and informed consent are described. Additionally, nursing professional competencies related to ethical, legal, and social issues in the translation of genomics into health care are discussed.
Ethical, legal, and social considerations in new genomic discovery necessitate that healthcare professionals have knowledge and competence to respond to complex genomic issues and provide appropriate information and care to patients, families, and communities.
Understanding the ethical, legal, and social issues in the translation of genomic information into practice is essential to provide patients, families, and communities with competent, safe, effective health care.
与人类基因组相关的科学发现所带来的新信息的快速连续供应，使得信息的翻译和纳入临床环境变得困难，并给提供者带来了伦理、法律和社会挑战。本文概述了一些法律和伦理基础，这些基础指导我们应对与人类基因组相关的科学发现对医疗保健产生影响相关的当前复杂问题。
重叠的伦理、法律和社会影响，影响着护士和其他医疗保健专业人员，因为他们试图确定与新的基因组科学知识相关的重要信息，并将其转化为实践。
专业守则、人类尊严和人权等伦理和法律基础为理解高度复杂的基因组问题提供了框架。描述了卫生提供者在将基因组知识转化为实践时的伦理、法律和社会关注，包括最小化伤害、最大化利益、透明度、保密性和知情同意。此外，还讨论了与将基因组学转化为医疗保健相关的伦理、法律和社会问题的护理专业能力。
新基因组发现中的伦理、法律和社会考虑因素要求医疗保健专业人员具备知识和能力，以应对复杂的基因组问题，并为患者、家庭和社区提供适当的信息和护理。
理解将基因组信息转化为实践中的伦理、法律和社会问题对于为患者、家庭和社区提供有能力、安全、有效的医疗保健至关重要。
