Department for Coagulation Disorders, University Hospital, Malmö, Sweden.
Haemophilia. 1999 May;5 Suppl 2:1-6. doi: 10.1046/j.1365-2516.1999.0050s2001.x.
In the past decades von Willebrand disease (vWD) has, in several respects, fallen into the shadow of classical haemophilia due to all problems that have faced those dealing with congenital bleeding disorders, not least regarding blood-borne diseases. The time has come to revisit and refocus on vWD, probably the most common bleeding disorder. Accordingly, a number of Nordic physicians and scientists working in this field organized a meeting on the ferry boat from Stockholm to Mariehamn, in the Aland islands, the home of the index families with this disease, as described by Erik von Willebrand in 1926. The objective of the meeting was to make a comprehensive survey of vWD as seen from the situation in the Nordic countries. In order to achieve all goals some scientists of note from countries outside the Nordic area were invited as well. This paper gives a summary of the symposium, mainly based on the separate papers published in this issue.
在过去的几十年中，由于与先天性出血性疾病相关的所有问题，尤其是与血源性疾病相关的问题，血管性血友病（von Willebrand disease，vWD）在某些方面已经退居经典血友病的阴影之下。现在是重新审视和关注 vWD 的时候了，vWD 可能是最常见的出血性疾病。因此，一些在该领域工作的北欧医生和科学家组织了一次会议，会议地点在从斯德哥尔摩到玛丽港的渡轮上，玛丽港位于阿兰群岛，这里是 Erik von Willebrand 于 1926 年描述的该病索引家族的所在地。会议的目的是全面调查北欧国家所见的 vWD。为了实现所有目标，还邀请了一些来自北欧以外国家的知名科学家。本文主要根据本期发表的专题论文，总结了专题讨论会的情况。
