SEIN - Epilepsy Institute in the Netherlands, Achterweg 5, Heemstede, The Netherlands.
Curr Opin Neurol. 2013 Apr;26(2):219-25. doi: 10.1097/WCO.0b013e32835f2037.
Epilepsy can hijack the lives of many persons of all ages. It is an unpredictable disease that can manifest itself in seizures, brain damage and cognitive and psychiatric disabilities, although some people with epilepsy can have a relatively normal life. People with epilepsy are among the most vulnerable in any society because the disease is misunderstood and often stigmatizing. Thus, many patients and their families are reluctant to admit that they suffer from epilepsy. This in turn affects public policy in terms of patient care, early diagnosis, medical research, advocacy, cure and their very lives.
A survey to evaluate the results of Global Campaign Against Epilepsy activities on a national level was performed in 2009. Data from the demonstration projects have already changed the public policies in several countries.
On the occasion of the launch of phase II of the Campaign, the WHO Director General stated: 'The collaboration between the IBE, ILAE and WHO has shown that when people with different backgrounds and roles come together with a shared purpose, creativity is released and expertise is used in innovative and constructive ways'. Indeed, this partnership led to many activities and all over the world to many people 'standing up for epilepsy'.
综述目的：癫痫可影响各年龄段人群的生活。癫痫是一种不可预测的疾病，可导致发作、脑损伤以及认知和精神障碍，尽管一些癫痫患者可以过相对正常的生活。由于对这种疾病的误解和普遍存在的污名化，癫痫患者是任何社会中最脆弱的群体之一。因此，许多患者及其家属不愿承认自己患有癫痫。这反过来又影响了患者护理、早期诊断、医学研究、宣传、治疗以及他们生命本身等方面的公共政策。
最新发现：2009 年，对全球抗癫痫运动各项活动在国家层面的成果进行了评估调查。示范项目的数据已经改变了几个国家的公共政策。
总结：在该运动第二阶段启动之际，世卫组织总干事表示：“国际癫痫局、国际抗癫痫联盟和世卫组织之间的合作表明，当具有不同背景和作用的人怀着共同的目标走到一起时，创造力被激发，专业知识以创新和建设性的方式得到利用。”事实上，这种伙伴关系促成了世界各地的许多活动和许多人“为癫痫挺身而出”。
