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国际抗癫痫联盟/国际癫痫局/世界卫生组织全球抗癫痫运动:让癫痫“走出阴影”

The ILAE/IBE/WHO Global Campaign against Epilepsy: Bringing Epilepsy "Out of the Shadows".

作者信息

Reynolds Edward H.

出版信息

Epilepsy Behav. 2000 Aug;1(4):S3-S8. doi: 10.1006/ebeh.2000.0104.

DOI:10.1006/ebeh.2000.0104
PMID:12609455
Abstract

Epilepsy affects at least 100 million people worldwide at some time in their lives, especially in childhood and adolescence. It is a universal problem involving all ages, races, social classes, and nations. Nevertheless, it has been misunderstood, feared, and stigmatized for more than 3000 years. The psychosocial and economic consequences of epilepsy are considerable in developed nations but are even greater in developing nations, where the treatment gap may vary from 60 to 98%. To address the long-standing worldwide neglect of this disease, a campaign titled Epilepsy: Out of the Shadows has been launched by an alliance of three global organizations: the International League against Epilepsy (ILAE), the International Bureau for Epilepsy (IBE), and the World Health Organization (WHO). Global, regional, and national initiatives are currently underway.

摘要

癫痫在全球范围内至少影响了10亿人,且在其人生的某个阶段都会受到影响,尤其是在儿童期和青少年期。这是一个涉及所有年龄、种族、社会阶层和国家的全球性问题。然而,在长达3000多年的时间里,它一直被误解、恐惧和污名化。癫痫对社会心理和经济的影响在发达国家相当大,但在发展中国家更为严重,在这些国家,治疗缺口可能在60%至98%之间。为了解决长期以来全球对这种疾病的忽视,由国际抗癫痫联盟(ILAE)、国际癫痫局(IBE)和世界卫生组织(WHO)这三个全球组织组成的联盟发起了一场名为“癫痫:走出阴影”的运动。目前正在开展全球、区域和国家层面的相关行动。

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